As part of Cure CMD's partnership with the Chan-Zuckerberg Rare As One Initiative, Executive Director Rachel Alvarez shared her "origin story" and her motivation for the work she does in support the congenital muscular dystrophy community. Partnered with Dr. Monkol Lek, a researcher and neuromuscular-affected individual leading a CZI-funded research project to develop a pediatric cell atlas, these stories highlight how each are navigating diagnosis and organizing communities to accelerate research, identify treatments, and change the course for their diseases and their communities.
Check out the recordings and transcripts on Story Collider's website.
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