Cure CMD Receives 2024 MDA Advocacy Collaboration Grant

Cure CMD is thrilled to announce that it is one of eight recipients of the 2024 Muscular Dystrophy Association (MDA) Advocacy Collaboration Grant. This is the third time Cure CMD has been awarded this grant.

“This year's Advocacy Collaboration Grant will enable us to organize our own advocacy event in 2025. During this event, we plan to train CMD advocates to tell their stories effectively, update the community on current legislation, and meet with legislators to discuss issues important to our CMD Community. We could not do this important work without the generous support of MDA,” said Lani Knutson, Legislative Advocacy Team Lead, Cure CMD.

The Advocacy Collaboration Grant, created in 2022, is part of MDA’s program to promote and support key public policy and advocacy initiatives in coordination with partner organizations to empower people living with neuromuscular diseases to live longer, more independent lives.

“At Muscular Dystrophy Association, we’re proud to support innovative collaborations that drive meaningful change for the neuromuscular community,” said Paul Melmeyer, Executive Vice President, Public Policy and Advocacy, Muscular Dystrophy Association. “These grants represent a critical investment in uniting advocacy efforts to ensure that every voice is heard

and that individuals and families affected by neuromuscular diseases have access to the care and support they need.”

Cure CMD congratulates fellow grantees: The Akari Foundation, All Wheels Up, Christopher and Dana Reeve Foundation, Cure LGMD2i, Cure Rare Disease, FSHD Society, and Hereditary Neuropathy Foundation.