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Writer's pictureRachel Alvarez

Learn About Proactive Pulmonary Care with Our New Guide


Cure CMD is grateful for the tremendous voluntary contributions made by the authors of the CMD Pulmonary Guide, and their ongoing dedication to improving pulmonary care for affected individuals with congenital muscular dystrophy.

Oscar Mayer, MD – Children’s Hospital Philadelphia

MyMy Buu, MD – Stanford University

Robert Graham, MD – Boston Children’s Hospital

Richard Kravitz, MD – Duke University

Oren Kupfer, MD –Children’s Hospital Colorado

Geovanny Perez, MD – Children’s National Medical Center

Hemant Sawnani, MD – Cincinnati Children’s Hospital Medical Center

Pulmonary care is complicated and no clinician can be expected to understand every possible disease with respiratory complications, especially in ultra-rare conditions. If your pulmonary care team is not familiar with the care standards in congenital muscular dystrophy, please encourage them to review this guide.

The CMD Pulmonary Guide is available now in two formats:

This guide is currently only available in English. Interested in translating the CMD Pulmonary Guide to another language? Email us at info@curecmd.org.

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