Mental Health Resource Page
Caregiver​
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Mindfulness/Gratefulness
- Meditation Strategies
- Journaling -
"You're Not Alone"
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Family Dynamic
- Coping, Family and Relations Unit
- Family Planning: Decisions and Considerations
- Communicating Effectively and Compassionately to Help Siblings Cope (also in Spanish)
- Supporting the Surviving Siblings- Siblings Under Stress
- Strengthening Your Parenting Partnership
- For Extended Family
- Support for the Rare Disease Family Caring for Siblings of Kids with Rare Diseases
- Rare Kids Growing Up Experiencing Transitions in Care and Life
- A good video about the family dynamic
- Relief for Rare Mothers
- Rare Dad/Family Planning: Transition of Care: Planning for Care for Children with a Rare Disease
- Caregiver Burnout
- Caregiver Self-Care
Affected Individual​
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Hobbies
- Adaptive Dance
- Adaptive Gaming
- Adaptive Yoga
- Board games
- Crafting
- Cooking
- Cooking Tips
- Equine-Assisted Services
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Therapy as an outlet & Online virtual telehealth options
Other Resources
*DISCLAIMER*
The views and/or advice expressed in the above publications should not be taken in lieu of medical attention. Medical opinions expressed or shared should not be substituted or interpreted as medical advice. Please consult your healthcare provider regarding any health-related concerns.