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Kelly Berger & Avery Roberts
4 days ago3 min read
2025 Rare Disease Week Recap
CMD Advocates gathered in Washington, DC to honor, celebrate & champion for those living with rare disease.
Lani Knutson
Feb 121 min read
A Message from Cure CMD’s Advocacy Team Lead
The Cure CMD Legislative Advocacy team, along with our advocacy partners, continue to actively monitor developments and will provide updates
Lani Knutson, Advocacy Team Leader
Jul 1, 20242 min read
Cure CMD Seeks Advocacy Advisory Council Members
Join a newly forming council to help direct legislative priorities for the CMD community.
Kassidy C.
Jun 27, 20243 min read
Youth Advocate Attends First Virtual Hill Day
I had the opportunity to kick off my rare advocacy journey and experience my first Capitol Hill Day.
Lani Knutson, Advocacy Team Leader
Mar 20, 20245 min read
2024 Rare Disease Week Recap
Cure CMD’s Advocacy Lead, Lani Knutson, provides a recap of events for Rare Disease Week on Capitol, February 25 — 29, 2024.
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