Blog | Cure CMD

Oct 18, 20214 min read

Adrenaline Hangover

When Michael woke up with a fever and sore throat last Monday, I assumed it was strep throat. This kid can get strep just by thinking...

Sep 13, 20213 min read

How Much? How Little?

Each fall, I email my sons’ teachers to give an overview of their Congenital Muscular Dystrophy (CMD). I explain the differences they can...

Sep 3, 20211 min read

2021 SciFam Content Now Available on YouTube

Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...

Sep 3, 20211 min read

Calling All Artists: Cure CMD’s Creative Contest for Affected Individuals

Open to all individuals affected by a neuromuscular condition age 6 and older, the Creative Contest seeks to celebrate all the painty,...

Sep 3, 20211 min read

CMD Young Adult Programming Now Available

If you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...

Sep 3, 20212 min read

Five-Minute Advocacy Update

Want to advocate on behalf of yourself or a loved one with CMD? Right now, several proposed U.S. bills exist that would benefit the CMD...

Sep 3, 20211 min read

Liam: A Rare College Experience Featured On The Disorder Channel

We are thrilled to announce that the 2019 Cure CMD-produced documentary, Liam: A Rare College Experience, is now streaming on The...

Sep 3, 20212 min read

The Benefits of Legacy Giving

Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...

Sep 3, 20211 min read

Caught Up on the Latest KSSK Episodes?

Our one-of-a-kind, educational, and entertaining web series demystifies pulmonary best care practices for those impacted by neuromuscular...

Sep 3, 20213 min read

Co-pay Assistance Programs Essential to Patients and Caregivers

Ohioans have been focused on protecting their family from the COVID crisis. But that is not the only public health crisis facing...

Aug 30, 20212 min read

Congratulations Dr. Erdmann!

Congratulations CMD Researcher and Community Member, Dr. Jeannette Erdmann! We are thrilled to share that CMD researcher and...

Aug 27, 20213 min read

The Asterisk

About a month ago, I contacted the boys’ pediatrician to get her advice about sending them back to school this fall since our youngest is...