Blog | Cure CMD

Feb 15, 20231 min read

2023 Rare Disease Week

For the first time since 2020, 2023 Rare Disease Week on Capitol Hill will happen in person, in Washington D.C., from February 28 to...

Feb 15, 20231 min read

2022 SciFam Conference Recordings

A big Thank You to everyone who participated in our 2022 Scientific and Family Conference! If you did not have the opportunity to...

Feb 15, 20231 min read

Webinar Series

Get Caught Up on our Webinar Series Our goal at Cure CMD is to bring you educational content relatable to your CMD journey to support...

Feb 12, 20233 min read

What's the Problem?

Through my myriad of experiences over many years, my eyes have been opened to the astounding and vast diversity of people. Specifically,...

Feb 7, 20234 min read

Creating pathways to LGMD genetic diagnosis: Spotlight on LGMD Grant Award recipient Cure CMD

Cure CMD is the fortunate recipient of a grant from Sarepta Therapeutics to promote genetic testing in the LGMDs. Limb-girdle muscular...

Feb 7, 20234 min read

Before and After I was Diagnosed: One Breath at a Time

My name is Stephanie Chicas. I am 29 years old. This is the story of how recurrent lung infections and one traumatic day prompted me to...

Nov 21, 20223 min read

Cure CMD Announces 2022 Research Grants

$482,000 Awarded for CMD Science We are thrilled to announce the newest round of research grants focused on congenital muscular...

Oct 1, 20223 min read

My Unsung Hero

One of my favorite podcasts is Hidden Brain. I find it so fascinating, and there is so much to love – social science, human behavior...

Sep 28, 20221 min read

A Great Accessible Visit: Heritage Museums and Gardens

My family and I recently had a chance to visit Heritage Museums and Gardens in Sandwich, MA. It struck me how well this place went above...

Aug 25, 20222 min read

Calling All Researchers: New Funding Opportunity in COL6-RD

Every year, the Million Dollar Bike Ride (MDBR), hosted by the Penn Medicine Orphan Disease Center (ODC), raises funds for a handful of...

Aug 23, 20221 min read

Why give to Cure CMD?

We often hear this from our friends, even those who’ve been generous to us in the past. In this day and age, it’s a legitimate question...

Aug 23, 20223 min read

SciFam Spotlight: Young Adult Programming

At the height of COVID, many of us were learning that “zoom” was more than just a verb, Cure CMD began sponsoring Happy Hours. As we...