Blog | Cure CMD

May 1, 20231 min read

Medicaid & CHIP Re-enrollment Returns!

As the United States ends its COVID 19 public health emergency, the continuous enrollment provision is coming to an imminent end....

Apr 27, 20232 min read

Never Too Old to Follow Your Dreams

During COVID, I had a bit of extra time on my hands and wanted to create something that was accessible and fun for everyone to play. One...

Apr 10, 20231 min read

Giving Appreciated Securities: One Way to Support Cure CMD

For members of the CMD ommunity who are charitably inclined, one giving option is donating shares of appreciated securities. Donating...

Apr 10, 20234 min read

Finding What Makes Me Feel Free

My name is Saif Aslam (under the pen name, Ud Din), a CMD community member, and am the author of What I Could’ve Been, a children’s book...

Mar 29, 202313 min read

Mom shares journey to accepting son’s CMD diagnosis

On April 29, 2016, Isaiah-Levi Anthony Johnson was pushed into this world. The nurse handed me my perfectly healthy baby. He was to be my...

Mar 27, 20233 min read

Cure CMD x Patients Rising to Provide Support

Cure CMD Partners with the Patient Helpline to Provide Support and Navigation Services LAKEWOOD, CA — March 27, 2023 — Cure CMD announces...

Mar 13, 20233 min read

Rare Disease Week on Capitol Hill 2023 Recap

In February 2023, members of the Cure CMD Advocacy Team joined 600 rare disease advocates from over 300 patient organizations in...

Mar 8, 20232 min read

"We Are Not Done Yet”: Remembering Disability Rights Activist, Judy Heumann

Judith “Judy” Heumann — widely regarded as “the mother” of the disability rights movement — passed away in Washington, D.C. on the...

Feb 28, 20233 min read

2023 #ShowYourStripes: My Disability Journey, The Gen Z Way

I thrive on the internet. On camera, especially. The phrase “chronically online” has been used widely throughout the past few years...

Feb 27, 20231 min read

Advocacy Team Preparing for RDW 2023

This week, members of the Cure CMD Advocacy Team will join hundreds of rare disease advocates in Washington D.C. for Rare Disease Week on...

Feb 17, 20232 min read

Cure CMD Awarded MDA Advocacy Grant

Cure CMD is excited to be a recipient of the Muscular Dystrophy Association's 2023 Advocacy Collaboration grant. This award will be used...

Feb 15, 20231 min read

Use Your Voice for Change

In 2022, Cure CMD's Legislative Advocacy Team continued to support legislation that provides access to healthcare, education, employment,...