Kierra SunrisFeb 28, 20233 min2023 #ShowYourStripes: My Disability Journey, The Gen Z WayI thrive on the internet. On camera, especially. The phrase “chronically online” has been used widely throughout the past few years...
Lani Knutson, Advocacy Team LeaderFeb 27, 20231 minAdvocacy Team Preparing for RDW 2023This week, members of the Cure CMD Advocacy Team will join hundreds of rare disease advocates in Washington D.C. for Rare Disease Week on...
Cure CMDFeb 17, 20232 minCure CMD Awarded MDA Advocacy GrantCure CMD is excited to be a recipient of the Muscular Dystrophy Association's 2023 Advocacy Collaboration grant. This award will be used...
Doenica PalacioFeb 15, 20231 minUse Your Voice for ChangeIn 2022, Cure CMD's Legislative Advocacy Team continued to support legislation that provides access to healthcare, education, employment,...
Lani Knutson, Advocacy Team LeaderFeb 15, 20231 min2023 Rare Disease WeekFor the first time since 2020, 2023 Rare Disease Week on Capitol Hill will happen in person, in Washington D.C., from February 28 to...
Cure CMDFeb 15, 20231 min2022 SciFam Conference RecordingsA big Thank You to everyone who participated in our 2022 Scientific and Family Conference! If you did not have the opportunity to...
Doenica PalacioFeb 15, 20231 minWebinar SeriesGet Caught Up on our Webinar Series Our goal at Cure CMD is to bring you educational content relatable to your CMD journey to support...
Lani Knutson, Advocacy Team LeaderFeb 13, 20233 minWhat's the Problem?Through my myriad of experiences over many years, my eyes have been opened to the astounding and vast diversity of people. Specifically,...