Cure CMD’s Advocacy Lead, Lani Knutson, provides a recap of events for Rare Disease Week on Capitol, February 25 — 29, 2024.

Like most families with a high school junior, we have begun the college discussion at our house. Higher ed is not uncharted territory for...

LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...

LAKEWOOD, CA — February 1, 2024 — Cure CMD is excited to be one of the seven recipient organizations of the Muscular Dystrophy...

I am 30 and I have been living with SELENON-Related Myopathy my whole life. This rare form of muscular dystrophy has affected me in many...

On September 29, I woke up eagerly because I was going sailing with my family, and not just any kind of sailing, adaptive sailing. The...

A comprehensive list of adaptive everyday products for the congenital muscular dystrophy (CMD) community to celebrate and uplift during the

For all the unintentionally insensitive and thoughtless things people have said to me over the years, no one has ever asked me the...

Inclusive Halloween ideas for all abilities. Find adaptive costumes and safely navigate accessible trick-or-treating options with a mobility

Since 2018, members of the CMD community have attended Rare Disease Week on Capitol Hill hosted by the Rare Disease Legislative...

Congratulations to this year's Creative Contest winners! Thank you to all who entered & helped support this creative initiative. See the...

Cure CMD's Advocacy Team is beginning plans for the next Rare Disease Week on Capitol Hill, scheduled for February 25-28, 2024! The...