Blog | Cure CMD

Jun 52 min read

Omigapil Publication Now Available

Long-awaited publication about the Phase 1 Open-Label Study of Omigapil in Patients With LAMA2- or COL6-Related Dystrophy now published.

May 284 min read

Research Update: SELENON

We are honored to support groundbreaking discoveries related to SELENON-Related Disorders.

May 2318 min read

Interview with Gustavo Dziewczapolski: Doctor in Neuropharmacology and Scientific Director of Cure CMD

Explore an in-depth interview with Gustavo Dziewczapolski, Doctor in Neuropharmacology and Scientific Director of Cure CMD. Gain insights in

May 12 min read

2024 Myology Congress Recap

Cure CMD’s Scientific Director, Dr. Gustavo Dziewczapolski, provides a recap of his attendance at the 8th International Myology Congress in

Apr 164 min read

Research Update: Collagen 6

We are honored to support groundbreaking discoveries in Collagen 6-Related Dystrophies (COL6-RD).

Apr 25 min read

Never Stop Driving: Cure CMD's Dedication to Community Member Simon Cantos

Honoring community member Simon Cantos and his legacy in the congenital muscular dystrophy community.

Mar 265 min read

My Rare Advocacy Journey

My rare disease advocacy journey started later in life. Like many, I had always felt too overwhelmed and unsure of how to start and was...

Mar 195 min read

2024 Rare Disease Week Recap

Cure CMD’s Advocacy Lead, Lani Knutson, provides a recap of events for Rare Disease Week on Capitol, February 25 — 29, 2024.

Feb 42 min read

Uncharted Territory

Like most families with a high school junior, we have begun the college discussion at our house. Higher ed is not uncharted territory for...

Feb 22 min read

Cure CMD x The Caregiver Compass Announce Partnership, Release Special Edition Caregiver Guidebook

LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...

Feb 12 min read

Cure CMD Awarded 2nd MDA Advocacy Grant

LAKEWOOD, CA — February 1, 2024 — Cure CMD is excited to be one of the seven recipient organizations of the Muscular Dystrophy...

Jan 304 min read

10 Energy Conservation *Tips: My Workout Journey With CMD

I am 30 and I have been living with SELENON-Related Myopathy my whole life. This rare form of muscular dystrophy has affected me in many...