Blog | Cure CMD

Mar 27, 20184 min read

Parents Raise Money for Rare Disease Research Through the Million Dollar Bike Ride at PENN Orphan Di

Parents of children and young adults with the rare disease Congenital Muscular Dystrophy (CMD), Susan Lee-Miller, Andy Parks, and Diane...

Jan 27, 20183 min read

Mathea Manley Representing the CMD Community at Rare Disease Week on Capitol Hill

At the end of next month, Matty will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...

Jan 27, 20182 min read

Megan Meyer Representing the CMD Community at Rare Disease Week on Capitol Hill

At the end of next month, Megan will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...

Jan 17, 20182 min read

An Important Message About the Flu

Flu Vaccinations and Proactive Respiratory Care are Critical for People with CMD Pulmonologist and CMD Advocate, Dr. Oscar H. Mayer,...

Nov 12, 20171 min read

Cure CMD hosts 380 attendees at its 2017 Scientific Family Conference

Cure CMD In May 2016, the Patient-Centered Outcomes Research Institute(PCORI) awarded funds to Cure CMD, a nonprofit, patient advocacy...

Nov 10, 20171 min read

Cure CMD's 5-Year Research Goals

Cure CMD has achieved significant impact in its first nine years as the only nonprofit organization in the U.S. dedicated specifically to...

Aug 3, 20171 min read

Team Cure CMD will be an official charity partner at the Los Angeles Marathon

Dear California CMD Community! Cure CMD has been accepted as a charity partner for the 2018 Los Angeles Marathon on March 18th. The...

Jul 10, 20171 min read

Cure CMD welcomes three new board members

Cure CMD welcomed three new members to the Board of Directors in July 2017. With the addition of Dr. Carla Grossman, Dr. Oscar H. Mayer,...

Mar 1, 20171 min read

CMDIR Newsletter

CMD Tissue Repository Serving families and researchers in the quest to find treatment solutions. Click here for the latest news from...

Jan 8, 20173 min read

2017 Kicks Off with New Treatments for Pediatric Neuromuscular Disorders

The last week of December 2016 finds us with the first and second ever FDA-approved treatments for two groups of affected individuals...

Jan 8, 20177 min read

Adapted Vehicles and Driving

Vehicles and Conversions The privilege for any disabled person is to obtain their driver's license and drive a vehicle. Driving can give...

Dec 13, 20162 min read

CMDIR Newsletter December 2016

Update Your Profile Please log into your CMDIR profile to update any changes to your contact information and complete any outstanding...