Rachel AlvarezApr 17, 20181 minIt's Volunteer Week and Here's Our Next Highlight: Robin SwallowRobin's two grandsons were diagnosed with SEPN1-RM in late 2014 after a terrible diagnostic odyssey that led them through three states...
Cure CMDApr 17, 20183 min2018 Tax Law: What We Know for SureCure CMD and the impact of the new tax law As many of you know, there is something about living with a rare condition that gives affected...
Rachel AlvarezApr 16, 20181 minIt's Volunteer Week and Here's Our First Highlight: Charlene YorkChar has been a mainstay of Cure CMD almost since inception. Mom, wife, sister-in-law and daughter-in-law to four (and counting)...
Cure CMDApr 4, 201811 minSanthera Announces Successful Completion of First Clinical Trial with Omigapil in Patients with CongPlease see the end of this article for Frequently Asked Questions - CALLISTO Phase 1 Clinical Trial Pratteln, Switzerland, April 5, 2018...
Terry SeluckyMar 27, 20184 minParents Raise Money for Rare Disease Research Through the Million Dollar Bike Ride at PENN Orphan DiParents of children and young adults with the rare disease Congenital Muscular Dystrophy (CMD), Susan Lee-Miller, Andy Parks, and Diane...
Cure CMDJan 27, 20183 minMathea Manley Representing the CMD Community at Rare Disease Week on Capitol HillAt the end of next month, Matty will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...
Cure CMDJan 27, 20182 minMegan Meyer Representing the CMD Community at Rare Disease Week on Capitol HillAt the end of next month, Megan will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...