Blog | Cure CMD

Feb 7, 20206 min read

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...

Feb 6, 20204 min read

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...

Feb 3, 20203 min read

Cure CMD Receives Major Investment from Chan Zuckerberg Initiative’s Rare As One Network

The 11-Year-Old Nonprofit Will Receive a Two-Year Grant for Capacity-Building Efforts LAKEWOOD, CA, USA (Feb. 3, 2020) — Cure CMD is...

Jan 17, 20204 min read

Significant Updates to LGMD Definitions and Nomenclature

Some Conditions Formerly Known as LGMDs have Newer, More Accurate, More Helpful Names This lay summary has been extracted from the peer...

Jan 14, 20201 min read

Learn About Proactive Pulmonary Care with Our New Guide

Cure CMD is grateful for the tremendous voluntary contributions made by the authors of the CMD Pulmonary Guide, and their ongoing...

Jan 11, 20201 min read

Cure CMD Advocacy Update - January 2020

Rare Disease Week 2020 If you are planning to attend Rare Disease Week on February, check out the Next Steps as you prepare to travel to...

Jan 3, 20202 min read

Community Blog Initiative: The First Post

When this decade began, Cure CMD was a fledgling organization, less than two years old. For 14-year-old me, the highlight of those early...

Jan 1, 20201 min read

CMD Mobile App is Live!

Cure CMD has led the design and release of a comprehensive mobile app focused on Congenital Muscular Dystrophy (CMD) -- designed by the...

Dec 4, 20192 min read

Rare Disease Week 2020

If you plan to attend, your next steps are: Read Rob Sunris' blog post on last year's Rare Disease Week. Attend the Information Webinar...

Nov 26, 20192 min read

2020 Rare Disease Week: Join the Team

As part of the rare disease community, we are all advocates. We push for inclusion and accommodations at schools, teach our doctors...

Nov 16, 20191 min read

Attention Content Creators: Introducing Cure CMD’s Community Blog Initiative: For You, by You

As you know, 2019 has been a big year for the CMD community. As 2019 SciFam recedes from view, we’re gathering the lessons we’ve learned...

Nov 15, 20192 min read

Liam: A Rare College Experience

Liam Miller is a 21-year-old Computer Science major in his final year at Temple University. Like many 20-somethings, Liam lives on his...