New and Improved CMD International Registry
After 11 Years, the Congenital Muscle Disease International Registry(CMDIR) is Getting an Upgrade If you’re part of the CMD community,...
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Cure CMD
May 2, 20201 min read
Quick News For You
Head’s Up in Your Community What’s your Communication Style? Cure CMD wants to know more about how you like to engage with us. Will you...
Lani Knutson, Advocacy Team Leader
May 2, 20202 min read
Rare Disease Week - 2020 Report
The Cure CMD Advocacy Team was represented by 13 advocates at Rare Disease Week in Washington, D.C. during the last week of February....
Terry Selucky
May 2, 20202 min read
A Record Number of Proposals in response to Cure CMD's 2020 Grant Call
With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...
Cure CMD
May 2, 20201 min read
Cure CMD Support During COVID-19
Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...
Kierra Sunris
Apr 7, 20204 min read
Academic Advocacy
The transition between middle school and high school is a very exciting, but nerve- wracking time for all individuals who are affected by...
Sarah Foye
Mar 11, 20206 min read
College Search
AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...
Rachel Gaffney
Mar 6, 20202 min read
Disability Benefits with Muscular Dystrophy
How to Qualify for Disability Benefits with Muscular Dystrophy SSD Outreach Specialist The Congenital Muscular Dystrophy (CMD) community...
Lani Knutson, Advocacy Team Leader
Feb 15, 20202 min read
2020 Rare Disease Day: Show Your Stripes
In the Congenital Muscular Dystrophy (CMD) world, we know our disease is rare. And if you look at the numbers in each subtype, the groups...
Terry Selucky
Feb 14, 20202 min read
Plan a Local CMD-Focused Event
Cure CMD’s next family conference won’t be until Summer 2021, but we encourage smaller, regional groups to meet between now and then - we...
Rachel Alvarez
Feb 10, 20204 min read
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series
Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1, 2, and 3, we’ve covered the...
Rachel Alvarez
Feb 8, 20209 min read
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...
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