Up close and personal with Cure CMD's Executive Director
How did Rachel Alvarez become part of Cure CMD? I was born with congenital muscular dystrophy, but I didn't learn the details of my...
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Lani Knutson, Advocacy Team Leader
Sep 4, 20202 min read
Meet Molly
Meet Molly Wagner, high school student from Florida with CMD. Molly was tasked with creating a research project that not only...
Paul Desaulniers
Sep 4, 20204 min read
Sporting a Love for Sports (Part 1): How it Began
Check out Part 2 of Paul's 2-part series From a young age, I have always had an undying love for sports. My earliest sports memories are...
Terry Selucky
Aug 19, 20205 min read
Cure CMD Announces 2020 Research Grant Recipients
Funding Continues in a Challenging Year
Luke Hoban
Jul 28, 20202 min read
An Accessible Social Life During Self-Isolation
The COVID-19 pandemic has been brutal, especially in the United States. Both the actual impact of the virus itself and the mental strain...
Lani Knutson, Advocacy Team Leader
Jul 22, 20203 min read
You Can Never Go Back
If you are a parent of a child with special needs, a disability, or a rare disease, you’ve probably heard the poem Welcome to Holland. By...
Mindy Roberts
Jul 6, 20201 min read
CMD Virtual Happy Hour
The most valued and cherished part of the Cure CMD community is you, our members. We rely on and support each other often through trying...
Robin Swallow
Jul 6, 20201 min read
Peer to Peer Conversations: Connecting CMD to CMD
Do you have a question about your experiences with CMD? Do you have advice to help other affected individuals and caregivers? Cure CMD...
Angela Uncles
May 26, 20203 min read
Our Journey with Genetics
My daughter Lumina Jubilee was diagnosed with Walker-Warburg Syndrome--the most severe form of congenital muscular dystrophy--in utero at...
Luke Hoban
May 26, 20203 min read
Managing Caregivers During Quarantine
This week marks two months that I’ve been quarantining at home with my mom. My last excursion before the lock down was to my class at...
Rachel Alvarez
May 6, 20204 min read
Santhera Signs Agreements in Gene Therapy Research for CMD with Rutgers University
Pratteln, Switzerland, May 06, 2020 – Santhera Pharmaceuticals (SIX: SANN) announces the signing of two agreements with Rutgers, The...
Terry Selucky
May 4, 20202 min read
Giving Tuesday Now
Just like November's #GivingTuesday, #GivingTuesdayNow is not exclusively a fundraising day. It's an opportunity for people around the...
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