Blog | Cure CMD

Feb 1, 20213 min read

Three Days of Teaching Future Doctors

CMD has given me many things throughout my life: A wonderful community and the ability to play wheelchair hockey are at the top of the...

Dec 17, 20203 min read

KSSK CMD Chats: Pulmonary Web Series World Premiere

Registration open now World Premiere + Live Q&A on December 27, 2020 Many people affected by neuromuscular disorders may not know that...

Dec 10, 20206 min read

How Standing Up for Myself Helped Me Survive COVID-19

I was born in 1976 and my parents always knew some things were different, but my physical anomalies were always blamed on a birth...

Nov 10, 20202 min read

Holding our Breath

We wind our way up the parking ramp at Children’s of Wisconsin every six months. After parking, we make the long trek on foot through the...

Oct 31, 20203 min read

Pandemic Academics

It is that time of the century, about twenty years in, for our regularly scheduled once-in-a-lifetime global pandemic. A pandemic is a...

Oct 28, 20204 min read

Sporting a Love for Sports (Part 2) - A Passion for Power Hockey

Check out Part 1 of Paul's 2-part series There are some days that leave a lasting mark on your life. Years later you’re able to look back...

Oct 23, 20202 min read

New & Improved CMDIR Now Live!

The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...

Oct 23, 20202 min read

8th Annual Brothers K Fundraiser to Benefit CMD Research & Programming

Learn what successful family fundraising looks like from veteran CMD Community Members, the Knutsons In 2012, my husband, Tim, and I...

Oct 21, 20201 min read

You Have the Power to Drive Research

This week, we’ve put a spotlight on families and individuals who share how Cure CMD and our community have made a difference in their...

Oct 21, 20202 min read

CMD Community Member's TikTok accumulates over 40,000 followers

High school senior brings light to SEPN1 muscular dystrophy on TikTok Wrapping her fingers around her wrist so they touch, folding her...

Oct 19, 20204 min read

How I Made the Official Cure CMD App

Find the Cure CMD app in both the App Store and Google Play by searching “Cure CMD” It feels like several lifetimes ago at this point...

Oct 16, 20201 min read

Cure CMD Volunteer Charlene York Honored as NORD Rare Impact Awardee

Cure CMD would simply not be what it is today without the dedication, hard work, and commitment of our volunteers. They are the reason we...