Cure CMD x The Caregiver Compass Announce Partnership, Release Special Edition Caregiver Guidebook
LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...
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Cure CMD
Dec 3, 20235 min read
2023 Inclusive Product Guide
A comprehensive list of adaptive everyday products for the congenital muscular dystrophy (CMD) community to celebrate and uplift during the
Rachel Alvarez
Sep 3, 20211 min read
2021 SciFam Content Now Available on YouTube
Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...
Terry Selucky
Sep 3, 20211 min read
CMD Young Adult Programming Now Available
If you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...
Lani Knutson, Advocacy Team Leader
Sep 3, 20212 min read
Five-Minute Advocacy Update
Want to advocate on behalf of yourself or a loved one with CMD? Right now, several proposed U.S. bills exist that would benefit the CMD...
Cure CMD
Sep 3, 20212 min read
The Benefits of Legacy Giving
Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...
Terry Selucky
Sep 3, 20211 min read
Caught Up on the Latest KSSK Episodes?
Our one-of-a-kind, educational, and entertaining web series demystifies pulmonary best care practices for those impacted by neuromuscular...
Cure CMD
Apr 30, 20212 min read
SciFam 2021 is Around the Corner
An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...
Cure CMD
Apr 30, 20211 min read
CDC’s Milestone Tracker
Record Your Child’s Development When my kids were born, the age of smartphones and apps was just beginning. I would have loved to have...
Lani Knutson, Advocacy Team Leader
Feb 3, 20211 min read
Making Respiratory Muscle Training Fun?
Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...
Rachel Alvarez
Oct 23, 20202 min read
New & Improved CMDIR Now Live!
The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...
Mindy Roberts
Jul 6, 20201 min read
CMD Virtual Happy Hour
The most valued and cherished part of the Cure CMD community is you, our members. We rely on and support each other often through trying...
Robin Swallow
Jul 6, 20201 min read
Peer to Peer Conversations: Connecting CMD to CMD
Do you have a question about your experiences with CMD? Do you have advice to help other affected individuals and caregivers? Cure CMD...
Cure CMD
May 2, 20201 min read
Quick News For You
Head’s Up in Your Community What’s your Communication Style? Cure CMD wants to know more about how you like to engage with us. Will you...
Cure CMD
May 2, 20201 min read
Cure CMD Support During COVID-19
Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...
Sarah Foye
Mar 11, 20206 min read
College Search
AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...
Rachel Gaffney
Mar 6, 20202 min read
Disability Benefits with Muscular Dystrophy
How to Qualify for Disability Benefits with Muscular Dystrophy SSD Outreach Specialist The Congenital Muscular Dystrophy (CMD) community...
Rachel Alvarez
Feb 10, 20204 min read
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series
Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1, 2, and 3, we’ve covered the...
Rachel Alvarez
Feb 8, 20209 min read
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...
Rachel Alvarez
Feb 7, 20206 min read
Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series
Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...
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