Resource

Feb 22 min read

Cure CMD x The Caregiver Compass Announce Partnership, Release Special Edition Caregiver Guidebook

LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...

Cure CMD

Dec 3, 20235 min read

2023 Inclusive Product Guide

A comprehensive list of adaptive everyday products for the congenital muscular dystrophy (CMD) community to celebrate and uplift during the

2021 SciFam Content Now Available on YouTube

Rachel Alvarez

Sep 3, 20211 min read

2021 SciFam Content Now Available on YouTube

Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...

CMD Young Adult Programming Now Available

Terry Selucky

Sep 3, 20211 min read

CMD Young Adult Programming Now Available

If you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...

Lani Knutson, Advocacy Team Leader

Sep 3, 20212 min read

Five-Minute Advocacy Update

Want to advocate on behalf of yourself or a loved one with CMD? Right now, several proposed U.S. bills exist that would benefit the CMD...

Cure CMD

Sep 3, 20212 min read

The Benefits of Legacy Giving

Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...

Terry Selucky

Sep 3, 20211 min read

Caught Up on the Latest KSSK Episodes?

Our one-of-a-kind, educational, and entertaining web series demystifies pulmonary best care practices for those impacted by neuromuscular...

Cure CMD

Apr 30, 20212 min read

SciFam 2021 is Around the Corner

An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...

Cure CMD

Apr 30, 20211 min read

CDC’s Milestone Tracker

Record Your Child’s Development When my kids were born, the age of smartphones and apps was just beginning. I would have loved to have...

Lani Knutson, Advocacy Team Leader

Feb 3, 20211 min read

Making Respiratory Muscle Training Fun?

Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...

Rachel Alvarez

Oct 23, 20202 min read

New & Improved CMDIR Now Live!

The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...

Mindy Roberts

Jul 6, 20201 min read

CMD Virtual Happy Hour

The most valued and cherished part of the Cure CMD community is you, our members. We rely on and support each other often through trying...

Peer to Peer Conversations: Connecting CMD to CMD

Robin Swallow

Jul 6, 20201 min read

Peer to Peer Conversations: Connecting CMD to CMD

Do you have a question about your experiences with CMD? Do you have advice to help other affected individuals and caregivers? Cure CMD...

Cure CMD

May 2, 20201 min read

Quick News For You

Head’s Up in Your Community What’s your Communication Style? Cure CMD wants to know more about how you like to engage with us. Will you...

Cure CMD

May 2, 20201 min read

Cure CMD Support During COVID-19

Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...

Sarah Foye

Mar 11, 20206 min read

College Search

AJ’s senior yearbook quote: “Never let your circumstances define you.” At age 13 months our son, AJ, was diagnosed with a rare muscle...

Disability Benefits with Muscular Dystrophy

Rachel Gaffney

Mar 6, 20202 min read

Disability Benefits with Muscular Dystrophy

How to Qualify for Disability Benefits with Muscular Dystrophy SSD Outreach Specialist The Congenital Muscular Dystrophy (CMD) community...

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series

Rachel Alvarez

Feb 10, 20204 min read

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series

Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1, 2, and 3, we’ve covered the...

Rachel Alvarez

Feb 8, 20209 min read

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

Part 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...

Rachel Alvarez

Feb 7, 20206 min read

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...