The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...

This week, we’ve put a spotlight on families and individuals who share how Cure CMD and our community have made a difference in their...

Funding Continues in a Challenging Year

Pratteln, Switzerland, May 06, 2020 – Santhera Pharmaceuticals (SIX: SANN) announces the signing of two agreements with Rutgers, The...

After 11 Years, the Congenital Muscle Disease International Registry(CMDIR) is Getting an Upgrade If you’re part of the CMD community,...

With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...

Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1, 2, and 3, we’ve covered the...

Part 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...

Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...

Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...

​Some Conditions Formerly Known as LGMDs have Newer, More Accurate, More Helpful Names This lay summary has been extracted from the peer...

A “Triad” of patient advocacy organizations for ultra-rare congenital muscular diseases, Cure CMD (Congenital Muscular Dystrophy), A...

​​“I’m a very curious person,” says Veronica Pini, PhD student who stands just under five feet tall with long blond hair. Her...

Cure CMD (Congenital Muscular Dystrophy) is eager to announce a co-funded grant, in partnership with AFM-Téléthon, for Dr. Esther Zito’s...

Cure CMD (Congenital Muscular Dystrophy) is pleased to announce the recipient of a grant co-funded with Muscular Dystrophy UK: Dr. Giséle...

Cure CMD has great news! Earlier this year, we shared about the Million Dollar Bike Ride, an annual event held at PENN Orphan Disease...

Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for Collagen VI-CMD! Dr. Stefano Squarzoni: two years...

Cure CMD is thrilled to announce the 2018-2019 International Research Grant Awards for LAMA2-CMD! Research projects focused on LAMA2 have...

Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for SEPN1-RM! Dr. Ana Ferreiro: two years of funding...

What: A $180,000 grant has just been announced by the Muscular Dystrophy Association (MDA) to fund the exploration of potential of gene...