Fundraising

Sep 29, 20232 min read

An Exciting Milestone for LAMA2-CMD

Expanding on nearly a decade of partnership in the life sciences, the Translational Sciences team at UPMC Enterprises and the University...

Cure CMD

Jul 31, 20231 min read

Video Game Livestream and Fundraiser

Check out Community Member Kierra Sunris in her nightly Twitch livestream throughout July!

Cure CMD

Jul 31, 20231 min read

Team Cure CMD Raises $140K to Support CMD Research

This year, the MDBR's Team Cure CMD raised $140k for research.

Grateful for Our Supporters: Bequests and Other Planned Giving Opportunities

Cure CMD

Jun 28, 20231 min read

Grateful for Our Supporters: Bequests and Other Planned Giving Opportunities

Cure CMD has been blessed with gifts in many forms over the years from friends, families, and others with a wide variety of connections...

Cure CMD

Nov 21, 20223 min read

Cure CMD Announces 2022 Research Grants

$482,000 Awarded for CMD Science We are thrilled to announce the newest round of research grants focused on congenital muscular...

Cure CMD Awarded Additional Year of Funding through the Rare As One Network

Terry Selucky

Apr 4, 20222 min read

Cure CMD Awarded Additional Year of Funding through the Rare As One Network

Cure CMD is thrilled to announce a third year of funding from the Chan-Zuckerberg Initiative’s Rare As One Network, an effort to...

Cure CMD

Sep 3, 20212 min read

The Benefits of Legacy Giving

Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...

8th Annual Brothers K Fundraiser to Benefit CMD Research & Programming

Lani Knutson, Advocacy Team Leader

Oct 23, 20202 min read

8th Annual Brothers K Fundraiser to Benefit CMD Research & Programming

Learn what successful family fundraising looks like from veteran CMD Community Members, the Knutsons In 2012, my husband, Tim, and I...

Cure CMD Announces 2020 Research Grant Recipients

Terry Selucky

Aug 19, 20205 min read

Cure CMD Announces 2020 Research Grant Recipients

Funding Continues in a Challenging Year

Terry Selucky

May 4, 20202 min read

Giving Tuesday Now

Just like November's #GivingTuesday, #GivingTuesdayNow is not exclusively a fundraising day. It's an opportunity for people around the...

Cure CMD

May 2, 20201 min read

Quick News For You

Head’s Up in Your Community What’s your Communication Style? Cure CMD wants to know more about how you like to engage with us. Will you...

A Record Number of Proposals in response to Cure CMD's 2020 Grant Call

Terry Selucky

May 2, 20202 min read

A Record Number of Proposals in response to Cure CMD's 2020 Grant Call

With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...

Terry Selucky

Feb 14, 20202 min read

Plan a Local CMD-Focused Event

Cure CMD’s next family conference won’t be until Summer 2021, but we encourage smaller, regional groups to meet between now and then - we...

Cure CMD Receives Major Investment from Chan Zuckerberg Initiative’s Rare As One Network

Terry Selucky

Feb 3, 20203 min read

Cure CMD Receives Major Investment from Chan Zuckerberg Initiative’s Rare As One Network

The 11-Year-Old Nonprofit Will Receive a Two-Year Grant for Capacity-Building Efforts LAKEWOOD, CA, USA (Feb. 3, 2020) — Cure CMD is...

Cure CMD Co-Funds SEPN1 Research Project with AFM

Terry Selucky

Oct 31, 20182 min read

Cure CMD Co-Funds SEPN1 Research Project with AFM

Cure CMD (Congenital Muscular Dystrophy) is eager to announce a co-funded grant, in partnership with AFM-Téléthon, for Dr. Esther Zito’s...

Terry Selucky

Sep 13, 20182 min read

Cure CMD Co-Funds LMNA Research Grant with Muscular Dystrophy UK

Cure CMD (Congenital Muscular Dystrophy) is pleased to announce the recipient of a grant co-funded with Muscular Dystrophy UK: Dr. Giséle...

2018 Team Cure CMD - Million Dollar Bike Ride Raises $100k for Collagen VI Research

Terry Selucky

Aug 18, 20185 min read

2018 Team Cure CMD - Million Dollar Bike Ride Raises $100k for Collagen VI Research

Cure CMD has great news! Earlier this year, we shared about the Million Dollar Bike Ride, an annual event held at PENN Orphan Disease...

Rachel Alvarez

May 11, 20181 min read

Research Grant Award for Collagen VI

Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for Collagen VI-CMD! Dr. Stefano Squarzoni: two years...

Rachel Alvarez

May 1, 20181 min read

Two Research Grant Awards for LAMA2

Cure CMD is thrilled to announce the 2018-2019 International Research Grant Awards for LAMA2-CMD! Research projects focused on LAMA2 have...

Rachel Alvarez

May 1, 20181 min read

Research Grant Award for SEPN1

Cure CMD is thrilled to announce the 2018-2019 International Research Grant Award for SEPN1-RM! Dr. Ana Ferreiro: two years of funding...