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Kelly Berger
Mar 26, 20245 min read
My Rare Advocacy Journey
My rare disease advocacy journey started later in life. Like many, I had always felt too overwhelmed and unsure of how to start and was...
Kelly Berger
Feb 2, 20242 min read
Cure CMD x The Caregiver Compass Announce Partnership, Release Special Edition Caregiver Guidebook
LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...
Celine Rifai
Jan 3, 20242 min read
Adaptive Sailing on the Chesapeake Bay
On September 29, I woke up eagerly because I was going sailing with my family, and not just any kind of sailing, adaptive sailing. The...
Cure CMD
Dec 3, 20235 min read
2023 Inclusive Product Guide
A comprehensive list of adaptive everyday products for the congenital muscular dystrophy (CMD) community to celebrate and uplift during the
Lani Knutson, Advocacy Team Leader
Jul 24, 20232 min read
Accessible Air Travel
By September 30, 2023, Congress must reauthorize the Federal Aviation Act (FAA). Changes can be made when an act is reauthorized, and advoca
Kierra Sunris
Jul 21, 20234 min read
The College Journey, Volume 1: Living On Campus
Many steps must be taken to ensure you get the "full college experience" that other kids get while staying on campus. Here, I will share wha
Terry Selucky
Sep 3, 20211 min read
CMD Young Adult Programming Now Available
If you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...
Terry Selucky
Nov 15, 20192 min read
Liam: A Rare College Experience
Liam Miller is a 21-year-old Computer Science major in his final year at Temple University. Like many 20-somethings, Liam lives on his...
Cure CMD
Jun 15, 20182 min read
Good Access = Good Business
Community member, Daniella Slon wrote this article about accessibility in her hometown. We hope this inspires you to investigate your...
Cure CMD
Jan 8, 20177 min read
Adapted Vehicles and Driving
Vehicles and Conversions The privilege for any disabled person is to obtain their driver's license and drive a vehicle. Driving can give...
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