Education

Feb 22 min read

Cure CMD x The Caregiver Compass Announce Partnership, Release Special Edition Caregiver Guidebook

LAKEWOOD, CA — February 2, 2024 — Cure CMD & The Caregiver Compass team up to release a special edition caregiver guidebook for the CMD...

Cure CMD

Feb 7, 20234 min read

Creating pathways to LGMD genetic diagnosis: Spotlight on LGMD Grant Award recipient Cure CMD

Cure CMD is the fortunate recipient of a grant from Sarepta Therapeutics to promote genetic testing in the LGMDs. Limb-girdle muscular...

2021 SciFam Content Now Available on YouTube

Rachel Alvarez

Sep 3, 20211 min read

2021 SciFam Content Now Available on YouTube

Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...

CMD Young Adult Programming Now Available

Terry Selucky

Sep 3, 20211 min read

CMD Young Adult Programming Now Available

If you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...

Terry Selucky

Sep 3, 20211 min read

Caught Up on the Latest KSSK Episodes?

Our one-of-a-kind, educational, and entertaining web series demystifies pulmonary best care practices for those impacted by neuromuscular...

Cure CMD

Apr 30, 20212 min read

SciFam 2021 is Around the Corner

An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...

KSSK CMD Chats: Pulmonary Web Series World Premiere

Terry Selucky

Dec 17, 20203 min read

KSSK CMD Chats: Pulmonary Web Series World Premiere

Registration open now World Premiere + Live Q&A on December 27, 2020 Many people affected by neuromuscular disorders may not know that...

Cure CMD

May 2, 20201 min read

Cure CMD Support During COVID-19

Cure CMD is here to support you and your family during the COVID-19 pandemic. Resources can be found on the Cure CMD website at...

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series

Rachel Alvarez

Feb 10, 20204 min read

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four Part Series

Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1, 2, and 3, we’ve covered the...

Rachel Alvarez

Feb 8, 20209 min read

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

Part 3: Industry Will Get Us There In Part 2, we talked about the first three steps of drug development. Now, let’s cover the rest. Step...

Rachel Alvarez

Feb 7, 20206 min read

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...

Rachel Alvarez

Feb 6, 20204 min read

Understanding Drug Development - Why it Takes So Long & Costs So Much Money: A Four-Part Series

Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...

Significant Updates to LGMD Definitions and Nomenclature

Terry Selucky

Jan 17, 20204 min read

Significant Updates to LGMD Definitions and Nomenclature

Some Conditions Formerly Known as LGMDs have Newer, More Accurate, More Helpful Names This lay summary has been extracted from the peer...

Learn About Proactive Pulmonary Care with Our New Guide

Rachel Alvarez

Jan 14, 20201 min read

Learn About Proactive Pulmonary Care with Our New Guide

Cure CMD is grateful for the tremendous voluntary contributions made by the authors of the CMD Pulmonary Guide, and their ongoing...