Happy Rare Disease Day! Started in 2008, Rare Disease Day is an international event focused on bringing awareness to the more than 7,000...

I remember the night I was asked to be a part of the production, I was so thrilled, I almost cried! I’ll never forget what one of my...

Executive Director Rachel Alvarez shares a deep dive into her history as a rare disease patient, and what it means to lead Cure CMD.

When Michael woke up with a fever and sore throat last Monday, I assumed it was strep throat. This kid can get strep just by thinking...

Each fall, I email my sons’ teachers to give an overview of their Congenital Muscular Dystrophy (CMD). I explain the differences they can...

Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...

Open to all individuals affected by a neuromuscular condition age 6 and older, the Creative Contest seeks to celebrate all the painty,...

If you’re reading this, you probably already know that a key part of Cure CMD’s mission is to help support the CMD community through...

Want to advocate on behalf of yourself or a loved one with CMD? Right now, several proposed U.S. bills exist that would benefit the CMD...

We are thrilled to announce that the 2019 Cure CMD-produced documentary, Liam: A Rare College Experience, is now streaming on The...

Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...

Ohioans have been focused on protecting their family from the COVID crisis. But that is not the only public health crisis facing...

Congratulations CMD Researcher and Community Member, Dr. Jeannette Erdmann! We are thrilled to share that CMD researcher and...

About a month ago, I contacted the boys’ pediatrician to get her advice about sending them back to school this fall since our youngest is...

My first Cure CMD conference memories actually pre-date Cure CMD and the conferences themselves. In the early 2000s, when I was around...

Living with Congenital Muscular Dystrophy (CMD) can sometimes feel like a battle with an invincible enemy that's inside of me all the...

Everyone has a defining moment in their lives that shapes their entire future. For me, that moment came when I was about 6 years old. I...

An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...

Six Things I Have Learned While Raising Two Boys with SEPN1 Related Myopathy The questions “Why?” and “Why me?” cannot be answered. Some...

When various COVID-19 vaccines started to roll out in December 2020, I was thrilled like many people. I also knew that there was going to...