Executive Director Rachel Alvarez shares a deep dive into her history as a rare disease patient, and what it means to lead Cure CMD.

When Michael woke up with a fever and sore throat last Monday, I assumed it was strep throat. This kid can get strep just by thinking...

Each fall, I email my sons’ teachers to give an overview of their Congenital Muscular Dystrophy (CMD). I explain the differences they can...

Open to all individuals affected by a neuromuscular condition age 6 and older, the Creative Contest seeks to celebrate all the painty,...

We are thrilled to announce that the 2019 Cure CMD-produced documentary, Liam: A Rare College Experience, is now streaming on The...

Ohioans have been focused on protecting their family from the COVID crisis. But that is not the only public health crisis facing...

My first Cure CMD conference memories actually pre-date Cure CMD and the conferences themselves. In the early 2000s, when I was around...

Living with Congenital Muscular Dystrophy (CMD) can sometimes feel like a battle with an invincible enemy that's inside of me all the...

Everyone has a defining moment in their lives that shapes their entire future. For me, that moment came when I was about 6 years old. I...

An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...

Six Things I Have Learned While Raising Two Boys with SEPN1 Related Myopathy The questions “Why?” and “Why me?” cannot be answered. Some...

When various COVID-19 vaccines started to roll out in December 2020, I was thrilled like many people. I also knew that there was going to...

We recently met with members of the Curley family, new members of the Cure CMD community. We asked them to share their story with you! If...

Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...

Jaclyn Prystupa was always interested in science. In school, biology was her favorite subject, and the Saskatchewan Science Centre was...

CMD has given me many things throughout my life: A wonderful community and the ability to play wheelchair hockey are at the top of the...

Registration open now World Premiere + Live Q&A on December 27, 2020 Many people affected by neuromuscular disorders may not know that...

I was born in 1976 and my parents always knew some things were different, but my physical anomalies were always blamed on a birth...

We wind our way up the parking ramp at Children’s of Wisconsin every six months. After parking, we make the long trek on foot through the...

It is that time of the century, about twenty years in, for our regularly scheduled once-in-a-lifetime global pandemic. A pandemic is a...