Advocacy Advisory Council defines legislative priorities based on CMD Community survey results.

CMD affected individuals are given the opportunity to visit overseas through a foreign exchange arranged by community members.

CMD Community Member & Executive Producer, Steve Way, releases groundbreaking film, Good Bad Things, in 50 AMC Theatres across the U.S.

One of the most important ways you can advocate is to vote.

Join a newly forming council to help direct legislative priorities for the CMD community.

I had the opportunity to kick off my rare advocacy journey and experience my first Capitol Hill Day.

Honoring community member Simon Cantos and his legacy in the congenital muscular dystrophy community.

My rare disease advocacy journey started later in life. Like many, I had always felt too overwhelmed and unsure of how to start and was...

Like most families with a high school junior, we have begun the college discussion at our house. Higher ed is not uncharted territory for...

I am 30 and I have been living with SELENON-Related Myopathy my whole life. This rare form of muscular dystrophy has affected me in many...

On September 29, I woke up eagerly because I was going sailing with my family, and not just any kind of sailing, adaptive sailing. The...

For all the unintentionally insensitive and thoughtless things people have said to me over the years, no one has ever asked me the...

The Tenacity of Hope is a documentary film by Cure CMD, in partnership with Living in the Light, to showcase members of the congenital...

By September 30, 2023, Congress must reauthorize the Federal Aviation Act (FAA). Changes can be made when an act is reauthorized, and advoca

Many steps must be taken to ensure you get the "full college experience" that other kids get while staying on campus. Here, I will share wha

Cure CMD's film, The Tenacity of Hope, features the raw and real experiences of those living with congenital muscular dystrophy.

Progress toward treatments for CMD is a battle fought on several fronts. Clinicians work to improve diagnostics, care, and understand the...

Telehealth services have been critical to maintaining safe and consistent access to health care for patients with rare diseases such as...

Happy Rare Disease Day! Started in 2008, Rare Disease Day is an international event focused on bringing awareness to the more than 7,000...

I remember the night I was asked to be a part of the production, I was so thrilled, I almost cried! I’ll never forget what one of my...