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Lani Knutson
Oct 22 min read
Community Pulse: Legislative Priorities
Advocacy Advisory Council defines legislative priorities based on CMD Community survey results.
Kelly Berger & Avery Roberts
Oct 13 min read
Affected Individuals Flourish with an Overseas Exchange Opportunity
CMD affected individuals are given the opportunity to visit overseas through a foreign exchange arranged by community members.
Gustavo Dziewczapolski, Scientific Director
Sep 302 min read
One Step Closer to LAMA2-RD Clinical Trials: Modalis Therapeutics
Modalis Therapeutics program for LAMA2-RD gene therapy granted Rare Pediatric Disease Designation by FDA.
Gustavo Dziewczapolski, Scientific Director
Sep 235 min read
Research Update: LMNA
We are honored to support groundbreaking discoveries related to LMNA-CMD.
Cure CMD
Sep 12 min read
Workshop to Establish Subtype-Specific Care Recommendations for Congenital Muscular Dystrophy
We are thrilled to announce a new clinical workshop focused on establishing CMD subtype-specific care recommendations.
Kelly Berger & Avery Roberts
Aug 142 min read
Community Member Produces Groundbreaking Film
CMD Community Member & Executive Producer, Steve Way, releases groundbreaking film, Good Bad Things, in 50 AMC Theatres across the U.S.
Lani Knutson, Advocacy Team Leader
Aug 72 min read
Make Your Voice Heard - Vote!
One of the most important ways you can advocate is to vote.
Gustavo Dziewczapolski, Scientific Director
Aug 73 min read
Research Update: Dystroglycanopathy
We are honored to support groundbreaking discoveries related to Dystroglycanopathy.
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