Blog | Cure CMD

Oct 22 min read

Community Pulse: Legislative Priorities

Advocacy Advisory Council defines legislative priorities based on CMD Community survey results.

Oct 13 min read

Affected Individuals Flourish with an Overseas Exchange Opportunity

CMD affected individuals are given the opportunity to visit overseas through a foreign exchange arranged by community members.

Sep 302 min read

One Step Closer to LAMA2-RD Clinical Trials: Modalis Therapeutics

Modalis Therapeutics program for LAMA2-RD gene therapy granted Rare Pediatric Disease Designation by FDA.

Sep 235 min read

Research Update: LMNA

We are honored to support groundbreaking discoveries related to LMNA-CMD.

Sep 12 min read

Workshop to Establish Subtype-Specific Care Recommendations for Congenital Muscular Dystrophy

We are thrilled to announce a new clinical workshop focused on establishing CMD subtype-specific care recommendations.

Aug 142 min read

Community Member Produces Groundbreaking Film

CMD Community Member & Executive Producer, Steve Way, releases groundbreaking film, Good Bad Things, in 50 AMC Theatres across the U.S.

Aug 72 min read

Make Your Voice Heard - Vote!

One of the most important ways you can advocate is to vote.

Aug 73 min read

Research Update: Dystroglycanopathy

We are honored to support groundbreaking discoveries related to Dystroglycanopathy.

Jul 24 min read

Research Update: LAMA2

We are honored to support groundbreaking discoveries related to LAMA2-Related Dystrophy.

Jul 12 min read

Cure CMD Seeks Advocacy Advisory Council Members

Join a newly forming council to help direct legislative priorities for the CMD community.

Jun 273 min read

Youth Advocate Attends First Virtual Hill Day

I had the opportunity to kick off my rare advocacy journey and experience my first Capitol Hill Day.

Jun 62 min read

iMM Joins the MAGIC Consortium to Advance Research on Muscular Dystrophies

The MAGIC research team welcomes iMM to the consortium to add a cellular perspective to muscle-on-chip technologies