Resources

This is your community resource page. If you have additional resources to add to this list, please contact us at info@curecmd.com. If you have home improvement plans or solutions, or if you would like to feature your therapist for our quarterly therapy spotlight, please contact us as well.

All information listed on this page has been written by individuals with CMD and parents of children with CMD. You agree to release all members from any legal liability for any correspondence with this group or advice given. A doctor’s consultation should always be obtained before considering any advice from this group.

2010 Family Conference Presentations

CMD Standard of Care Document

Support Groups

Yahoo chat group
Cure CMD forum

Medical Aspects of Disease

1. Genetics/diagnosis
2. Breathing issues
3. Heart issues
4. Feeding issues
5. Sedation/General Anesthesia

Therapy

Featured physical, occupational or speech therapist: April Milan

Recreational Activities

Miracle League

School

1. IEP
2. Augmentive communication devices

Equipment

1. Adaptive Strollers
2. Manual vs Power Wheelchairs
3. Adapted Vehicles & Driving

Advocacy

MD Care Act
American Disability Act

Adaptive Resources

1. Abilities Expo
www.abilitiesexpo.com
A show for independent and assisted living products and services.
2. Equipment Catalogues
These resources include many items such as adaptive swings, feeding equipment, standers, gait trainers, and other special needs equipment.
a. Achievements Products for Children
www.specialkidszone.com
1-800-373-4699
b. Community Playthings
www.communityplaythings.com
1-800-777-4244
c. Flag House
www.flaghouse.com
1-800-793-7900
d. Sammons Preston
www.sammonspreston.com
1-800-323-5547
e. TherAdapt
www.theradapt.com
1-800-261-4919
3. Adapted jog strollers
www.dreamerdesign.net/axiom3
Jog strollers for special needs, accommodating up to 200 lbs.
4, Adapted bike carriers
www.cycletote.com
1-800-747-2407
Bicycle carriers for special needs, accommodating up to 175 lbs.
5. Other Online Resources:
http://www.adaptivemall.com/
(special needs strollers, car seats, standers, and other adaptive equipment)