Congenital Muscle Disease Traveling Local Clinics (CMD TLC)
“The best thing I did all year!” – Melissa Graziano, mother of Coen, affected with Congenital Muscular Dystrophy
“Very successful… highly enjoyable… very useful for both physicians and the families… It will be wonderful if the CMD Learning Clinic and Information Day becomes an annual event” –Dr. Richard Haas, UCSD Medical center
The CMD Traveling Local Clinic (TLC) mission is two fold; first, to support the development of international and national centers of CMD diagnostic and medical management best practices, fostering long term relationships and collaboration between NNDCS, Cure CMD and neuromuscular centers and second, to provide global outreach to clinicians and families with educational material, informative presentations and registration within the CMDIR to drive awareness and pro-active care raising quality of life and longevity for those with congenital muscle disease.