This page is dedicated to the scientists who are pushing CMD basic science towards translational targets and helping Cure CMD fulfill its mission to identify drugs to slow disease progression.

We would like to ask for your support in spreading CMDIR awareness by inserting this power point slide during future clinical presentations where appropriate and briefly discussing the power of a patient self report global registry.

The CMDIR goals:
1. register and identify the global CM and CMD population
2. act as a central hub for up to date clinical study and trial information
3. collect data on baseline medical management and treatment interventions
4. support genetic confirmation through referral to national centers of diagnostic excellence

Current NIH Grants

NIH Pathway to Independence Award (Parent K99/R00)

Mentored Quantitative Research Development Award (Parent K25)

Midcareer Investigator Award in Patient-Oriented Research (Parent K24)

Mentored Clinical Scientist Research Career Development Award (Parent K08)

Independent Scientist Award (Parent K02)

Mentored Research Scientist Development Award (Parent K01)

Upcoming and Past CMD and Muscular dystrophy Scientific and Medical Conferences

  • CMD Myomatrix Conference, April 22nd-24th, 2012, University of Nevada, Reno
  • Molecular Mechanisms of Muscle Growth and Wasting in Health and Disease, Sept 18-23rd, Ascona, Switzerland
  • Brickless Centre CMD Standards of Care, Sept 5-8th, Denmark
  • CMD TRND Meeting, June 2011
  • CMD Outcome Measure Follow up Meeting, London October 2010
  • CMD ENMC Outcome Measures workshop, March 5th-7th, 2010, Naarden, Holland
  • CMD Drug Discovery Meeting, January 26th, 2010, National Chemical Center Genomics
  • “Bringing down the Barriers- Translational Medicine in Inherited Neuromuscular Diseases” TREAT-NMD/NIH conference, Nov 17-19, 2009, Crowne Plaza Brussels City Centre, Brussels, Belgium (See: for more information)
  • CMD Standard of Care Workshop, Nov 14th-16th, Brussels, Belgium
  • Therapeutic Targets in the CMDs conference, July 9-11, 2009, Emory University, Atlanta. , Georgia Agenda
  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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