If you would like to add a support group or other related website to this list, please contact us at info@curecmd.org
Collagen VI CMD (Ullrich CMD and Bethlem Myopathy)
Read more about Collagen VI CMD
Ullrich Yahoo! Support Group
Bethlem Yahoo! Support Group
www.bethlemmyopathy.org
Merosin Deficient CMD
Read more about Merosin Deficient CMD
Facebook: Positive Mums for Merosin Negative Kids
Dystroglycanopathy CMD
Read more about the Dystroglycanopathies
LGMD2I Fund
Dystroglycanopathy Yahoo! Support Group
Walker Warburg Yahoo! Support Group
Lissencephaly Yahoo! Support Group
Fight For Keira – Walker Warburg Syndrome
The Samantha J Brazzo Foundation – LGMD2I
SEPN1 RM/Rigid Spine Muscular Dystrophy
Read about SEPN1
Yahoo! Support Group for Families with SEPN1/Rigid Spine MD
Rigid Spine Muscular Dystrophy Blog
L-CMD
Yahoo! support group for L-CMD
RYR1 CMD/Central Core Disease
Yahoo! Support Group for Families with Central Core Disease (RYR1)
Undiagnosed CMD, Including Merosin Positive
Read more about Merosin Positive CMD
Yahoo! Support group for Merosin Positive
Centronuclear and Myotubular Myopathy
The Information Point for Centronuclear and Myotubular Myopathy
Joshua Frase Foundation (MTM/CNM)
MTM/CNM Family Support & Discussion Facebook Page
Joshua Frase Foundation Facebook Page
Yahoo! Support group for Myotubular Myopathy
The Myotubular Trust
Where There’s A Will There’s A Cure Foundation for Myotubular Myopathy
Nemaline Myopathy
A Foundation Building Strength for Nemaline Myopathy
Yahoo! Support group for Nemaline Myopathy
Yahoo! Support group for For Future/Rising/Up-and-Coming Adults with Nemaline Myopathy
Yahoo! Support group for Teens and Young Adults with Nemaline Myopathy
Yahoo! Support group for Nemaline Myopathy Italian families.
General Resources
Cure CMD Facebook
Talk MD Forums for discussion of all kinds about Muscular Dystrophy
Patients Like Me
All inclusive Yahoo! group for CMD started in 1999, 175 members
Yahoo! group for Adults with CMD and other Rare Diseases
CureCMD on Twitter
