This is your community resource page. If you have additional resources to add to this list, please contact us at email@example.com. If you have home improvement plans or solutions, or if you would like to feature your therapist for our quarterly therapy spotlight, please contact us as well.
All information listed on this page has been written by individuals with CMD and parents of children with CMD. You agree to release all members from any legal liability for any correspondence with this group or advice given. A doctor’s consultation should always be obtained before considering any advice from this group.
Standards of Care for Congenital Muscle Disease
Family Conference Presentations
Online Support Groups
Medical Aspects of Disease
Diagnosis & Genetic Testing
Primary Care Physician’s Guide to Early Diagnosis of Neuromuscular Disease
The Importance of Genetic Testing
Testing for Centronuclear and Myotubular Myopathy through the University of Chicago (Fact Sheet)
Medication & Supplements
Exercise & Therapy
2. Augmentive communication devices
A show for independent and assisted living products and services.
These resources include many items such as adaptive swings, feeding equipment, standers, gait trainers, and other special needs equipment.
Achievements Products for Children
Adapted bike carriers
Bicycle carriers for special needs, accommodating up to 175 lbs.
Special needs strollers, car seats, standers, and other adaptive equipment
Tools and equipment for adapted literacy, handwriting, balance, mobility, positioning, furniture, play, communication, sensory solutions, fine motor, oral motor and body works.
If you are interested in volunteering, please contact us at firstname.lastname@example.org