This is your community resource page. If you have additional resources to add to this list, please contact us at info@curecmd.org. If you have home improvement plans or solutions, or if you would like to feature your therapist for our quarterly therapy spotlight, please contact us as well.
All information listed on this page has been written by individuals with CMD and parents of children with CMD. You agree to release all members from any legal liability for any correspondence with this group or advice given. A doctor’s consultation should always be obtained before considering any advice from this group.
Standards of Care for Congenital Muscle Disease
Family Conference Presentations
2011 Conference Presentations (please allow a few moments for the page to load)
2010 Conference Presentations (please allow a few moments for the page to load)
Online Support Groups
Support Groups and other Online Resources
Medical Aspects of Disease
1. Genetics/diagnosis
2. Breathing issues
3. Heart issues
4. Feeding issues
5. Sedation/General Anesthesia
Diagnosis & Genetic Testing
Primary Care Physician’s Guide to Early Diagnosis of Neuromuscular Disease
The Importance of Genetic Testing
Testing for Centronuclear and Myotubular Myopathy through the University of Chicago (Fact Sheet)
Medication & Supplements
The Use of Creatine in Neuromuscular Disease
Exercise & Therapy
Exercising with a Muscle Disease
Featured physical, occupational or speech therapist: April Milan
Recreational Activities
School
1. IEP
2. Augmentive communication devices
Equipment
1. Adaptive Strollers
2. Manual vs Power Wheelchairs
3. Adapted Vehicles & Driving
Advocacy
Advocacy 101
MD Care Act
American Disability Act
Adaptive Resources
Abilities Expo
www.abilitiesexpo.com
A show for independent and assisted living products and services.
Equipment Catalogues
These resources include many items such as adaptive swings, feeding equipment, standers, gait trainers, and other special needs equipment.
Achievements Products for Children
www.specialkidszone.com
1-800-373-4699
Community Playthings
www.communityplaythings.com
1-800-777-4244
Flag House
www.flaghouse.com
1-800-793-7900
Sammons Preston
www.sammonspreston.com
1-800-323-5547
TherAdapt
www.theradapt.com
1-800-261-4919
Adapted bike carriers
www.cycletote.com
1-800-747-2407
Bicycle carriers for special needs, accommodating up to 175 lbs.
Adaptive Mall
http://www.adaptivemall.com/
Special needs strollers, car seats, standers, and other adaptive equipment
Abilitations
http://store.schoolspecialty.com
Tools and equipment for adapted literacy, handwriting, balance, mobility, positioning, furniture, play, communication, sensory solutions, fine motor, oral motor and body works.
Volunteers
If you are interested in volunteering, please contact us at info@curecmd.org
CureCMD on Twitter
