This is your community resource page. If you have additional resources to add to this list, please contact us at info@curecmd.com. If you have home improvement plans or solutions, or if you would like to feature your therapist for our quarterly therapy spotlight, please contact us as well.
All information listed on this page has been written by individuals with CMD and parents of children with CMD. You agree to release all members from any legal liability for any correspondence with this group or advice given. A doctor’s consultation should always be obtained before considering any advice from this group.
Support Groups
Yahoo chat group
Cure CMD forum
Medical Aspects of Disease
1. Genetics/diagnosis
2. Breathing issues
3. Heart issues
4. Feeding issues
5. Sedation/General Anesthesia
Therapy
Featured physical, occupational or speech therapist: April Milan
MDA Clinics
(Coming Soon)
Recreational Activities
School
1. IEP
2. Augmentive communication devices
Equipment
1. Adaptive Strollers
2. Manual vs Power Wheelchairs
3. Adapted Vehicles & Driving
Advocacy
MD Care Act
American Disability Act
Adaptive Resources
1. Abilities Expo
www.abilitiesexpo.com
A show for independent and assisted living products and services.
2. Equipment Catalogues
These resources include many items such as adaptive swings, feeding equipment, standers, gait trainers, and other special needs equipment.
a. Achievements Products for Children
www.specialkidszone.com
1-800-373-4699
b. Community Playthings
www.communityplaythings.com
1-800-777-4244
c. Flag House
www.flaghouse.com
1-800-793-7900
d. Sammons Preston
www.sammonspreston.com
1-800-323-5547
e. TherAdapt
www.theradapt.com
1-800-261-4919
3. Adapted jog strollers
www.dreamerdesign.net/axiom3
Jog strollers for special needs, accommodating up to 200 lbs.
4, Adapted bike carriers
www.cycletote.com
1-800-747-2407
Bicycle carriers for special needs, accommodating up to 175 lbs.
5. Other Online Resources:
http://www.adaptivemall.com/
(special needs strollers, car seats, standers, and other adaptive equipment)
Volunteer
If you are interested in volunteering, please contact us at info@curecmd.com
(For example, organizing the CMD loaner closet, representing Cure CMD at medical/scientific conferences, fundraising)
