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Newsletter Archive
Winter 2010 Edition
The Winter 2010 newsletter is available for download here.
Fall 2009 Edition
The Fall 2009 newsletter is available for download here.
Summer 2009 Edition
The Summer 2009 newsletter is available for download here.
Winter 2008 Edition
Our first newsletter is available for download here.
Press Release Archive
Teen with CMD in the news
Alex Van Hook is an active teenager- who happens to have CMD.
S.A.M Announces Successful CMD Fundraising Campaign
Struggle Against Muscular Dystrophy (S.A.M.) is a Northern Irish nonprofit started by 2 parents whose son has CMD. S.A.M’s mission is to find a treatment and cure for merosin deficient CMD and bring awareness to the CMDs. Cure CMD and S.A.M. teamed up to move CMD therapies forward- the 2009 Cure CMD grant cycle awarded over $200,000 towards CMD science.
SAM Announces Drug Research Grant
Pedal 4 Pierce
By Natalie Cavallaro
Canberra Weekly, Australia
11/3/09
Inspired by a conversation with a fellow student, 10 year old student, Christopher Jefferys came home from a school sports day, determined to do something to help those less fortunate. Click here to read the article.
Minnesota executive and father tees up support for kids with CMD, September 9, 2009
Forest Lake resident Rich Cloud is on a mission.
Four years ago, he and his wife, Ann, discovered that their one-year-old daughter, Ashley, had Congenital Muscular Dystrophy (CMD).
While traveling around the country for IBM, his former employer, he made visits at the same time with various scientists and organizations affiliated with the congenital muscular dystrophies, a group of diseases that cause muscle weakness at birth and progress over time so that muscles break down faster than they can repair or grow. (more…)
International Database for Congenital Muscular Dystrophy Patients Offers Hope for Medical Trials, August 31, 2009
Emory University School of Medicine will coordinate data collection and provide genetic counseling and referral services
(HealthNewsDigest.com) – For thousands of American children suffering from congenital muscular dystrophy, medical research trials are often beyond reach. Congenital muscular dystrophy (CMD) represents several rare forms of muscular dystrophy and often children are misdiagnosed for years due to a lack of familiarity of CMDs by physicians. (more…)
