There are few internet resources on breathing problems in CMD. We would like to post your stories of CMD breathing problems and what has worked for you. Please contact us at firstname.lastname@example.org.
The resources listed below are mainly for Duchenne and ALS. There are striking similarities in the approach to using noninvasive ventilation. Until guidelines are established for CMD, these informational resources can be used as a guide.
- Dr. Bach is an expert on treatment of respiratory issues in neuromuscular disease. Visit his informative website to download protocols for ER and intensive care unit, order books. www.doctorbach.com
- American Thoracic Society Consensus Statement: A document that establishes and reviews the standards of pulmonary care in Duchenne muscular dystrophy. Respiratory Care of the Patient with Duchenne Muscular Dystrophy.
- These websites discuss hypoventilation and need for noninvasive ventilation and cough assist in neuromuscular disease patients, focused primarily on ALS patients.
- These three videos explain the use of a Cough Assist & Ambu Bag to stretch the chest wall and clear secretions: