Breathing Issues: Internet Resources

There are few internet resources on breathing problems in CMD. We would like to post your stories of CMD breathing problems and what has worked for you. Please contact us at

The resources listed below are mainly for Duchenne and ALS. There are striking similarities in the approach to using noninvasive ventilation. Until guidelines are established for CMD, these informational resources can be used as a guide.

  • Dr. Bach is an expert on treatment of respiratory issues in neuromuscular disease. Visit his informative website to download protocols for ER and intensive care unit, order books.
  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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