Management of CMD: A Family Guide
The old adage, “knowledge is power” was never been more true than in the face of a congenital disease affecting those we love and care for. This guide provides a foundation of information for families so that we may shift from the frustration of powerlessness to becoming an active participant in care and advocacy. All productive systems of care require a team approach and by providing families with medical information, in terms we can understand and share with professionals, this guide will enable us to more effectively participate on the team which is essential for the well-being of the individual with CMD.
The Family Guide is the translation of the CMD Consensus Guidelines into language that is easy to understand. This project was led by Dr. Thomas Sejersen and managed by Diane Smith Hoban and Susan Sklaroff Van Hook. Additional contributors: Anne Rutkowski, MD, Meganne Leach, PNP, Ching Wang, MD, Kate Bushby, MD, Katy Meilleur, PNP,PhD, Carsten Bonnemann, MD
CMD Consensus Guidelines, Journal of Child Neurology
The CMD Consensus Guidelines represent the efforts of an international CMD clinical consortium led by Dr. Ching Wang, Dr. Thomas Sejersen and Dr. Anne Rutkowski and was made possible through the generous support of TREAT-NMD, AFM, Telethon and Cure CMD.
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