Category Archives: News Scroller

Watch Ann Schrooten, CMD mom, deliver a simple and eloquent message to future physicians as part of a medical education program she developed called Touchstones of Compassionate Care Click here

Cure CMD, LGMD2I Fund and Newcastle office are teaming up to prepare for an LGMD2I clinical trial. First step, harmonizing registries. If FKRP, please register in www.fkrp-registry.org  If any other aDG-RD gene involved or unknown, please register in CMDIR, www.cmdir.org

2012 is starting off with a bang- $14,910 raised in response to a $10,000 challenge by Cure CMD’s Chair, Anne Rutkowski, nets $25,000 for research! Consider setting up a monthly donation through our donation page to help us reach our 2012 goal to raise $500,000!!

Phoenix team led by Ann Schrooten, family and friends rolls in over $3,000 for CMD research.  A big thanks to all who participated!

Cure CMD 2012 Funding: CMDIR Project Manager, the Myomatrix 2012 Scientific Conference, an LMNA-CMD iPS cell line and CMD Comparative Outcome Measure Study (CMD COM-Year 3).

Save the date! Webinar on Breathing Issues and Respiratory Management to take place on April 28, 2012.

Santhera Pharmaceuticals, Cure CMD, UCL/GOSH (Prof. Muntoni), NNDCS/NINDS (Dr. Bonnemann) and Endostem announce decision to proceed with an omigapil pK study in LAMA2 related CMD (Merosin/MDC1A) and Collagen 6 related Myopathy (UCMD, Collagen VI myopathy).  For more information, read below

Join us as we publish CMD perspectives articles to highlight how we live our lives, and tricks we have learned to get by and make our lives easier.  On the heels of the CMD Webinar: Management of Respiratory Issues, our focus for these pieces will illustrate these challenging issues.  The authors’ comments include thoughts on topics from advances in [...]