Category Archives: Press Releases

Alex Van Hook is an active teenager- who happens to have CMD.

Struggle Against Muscular Dystrophy (S.A.M.) is a Northern Irish nonprofit started by 2 parents whose son has CMD. S.A.M’s mission is to find a treatment and cure for merosin deficient CMD and bring awareness to the CMDs.  Cure CMD and S.A.M. teamed up to move CMD therapies forward- the 2009 Cure CMD grant cycle awarded [...]

By Natalie Cavallaro Canberra Weekly, Australia 11/3/09 Inspired by a conversation with a fellow student, 10 year old student, Christopher Jefferys came home from a school sports day, determined to do something to help those less fortunate. Click here to read the article.

Forest Lake resident Rich Cloud is on a mission. Four years ago, he and his wife, Ann, discovered that their one-year-old daughter, Ashley, had Congenital Muscular Dystrophy (CMD). While traveling around the country for IBM, his former employer, he made visits at the same time with various scientists and organizations affiliated with the congenital muscular [...]

Emory University School of Medicine will coordinate data collection and provide genetic counseling and referral services (HealthNewsDigest.com) – For thousands of American children suffering from congenital muscular dystrophy, medical research trials are often beyond reach. Congenital muscular dystrophy (CMD) represents several rare forms of muscular dystrophy and often children are misdiagnosed for years due to [...]