Category Archives: Press Releases

Press Releases

Driven Average Joe is Cole’s Super-Dad

By Unab | Published: January 20, 2012

Click here to read the article about Cole and what his dad has done to get him more mobile.

Also posted in Cure CMD News | Comments closed

Sidewalks Steps & Labyrinths

By Unab | Published: July 29, 2011

Kelly Moore discusses issues of wheelchair access in Houston, Texas

Posted in Press Releases | Comments closed

Cure CMD funds over $250,000 in CMD research in 2010

By anne_rutkowski | Published: December 16, 2010

Cure CMD funds $280,000 in research in 2010, bringing totals spent on CMD research in the last two years to over $1/2 million.  Two years funding in partnership with SAM.  Per Cure CMD’s Chairman, Anne Rutkowski, “Funding at this level has brought an increased focus to CMD science and drives the identification of new treatment [...]

Also posted in Research News | Comments closed

CMD Care Guidelines, a Reality!

By anne_rutkowski | Published: December 2, 2010

Cure CMD would like to thank Drs. Ching Wang and Thomas Sejersen who led the year and half effort to establish CMD Care Guidelines. Cure CMD thanks AFM, TREAT-NMD and Telethon Italy who co-funded the November meeting and the international group of clinicians, allied health professionals and families who provided feedback and expertise. For news release, click [...]

Posted in Press Releases | Comments closed

Charity announces further funding to help find a cure for CMD

By Unab | Published: May 21, 2010

SAM Supports Prothelia in Developing a Treatment for Muscular Dystrophy (click here)

Posted in Press Releases | Comments closed

Upper Black Eddy’s Van Hook Prepares for Half Marathon

By Unab | Published: April 28, 2010

Read the Herald article here

Posted in Press Releases | Comments closed

Taking His Aim at CMD

By Unab | Published: April 23, 2010

Check out the Bucks County Intelligencer article about Alex and the upcoming Half Marathon. View PDF version here

Posted in Press Releases | Comments closed

Teen with CMD in the news

By Unab | Published: January 30, 2010

Alex Van Hook is an active teenager- who happens to have CMD.

Posted in Press Releases | Comments closed

S.A.M Announces Successful CMD Fundraising Campaign

By Unab | Published: January 30, 2010

Struggle Against Muscular Dystrophy (S.A.M.) is a Northern Irish nonprofit started by 2 parents whose son has CMD. S.A.M’s mission is to find a treatment and cure for merosin deficient CMD and bring awareness to the CMDs.  Cure CMD and S.A.M. teamed up to move CMD therapies forward- the 2009 Cure CMD grant cycle awarded [...]

Posted in Press Releases | Comments closed

Pedal 4 Pierce

By anne_rutkowski | Published: November 27, 2009

By Natalie Cavallaro Canberra Weekly, Australia 11/3/09 Inspired by a conversation with a fellow student, 10 year old student, Christopher Jefferys came home from a school sports day, determined to do something to help those less fortunate. Click here to read the article.

Posted in Press Releases | Comments closed