Category Archives: News from Other Sources

News gathered from external sources by our RSS aggregator.

Rochester Leads International Effort To Improve Muscular Dystrophy Treatment

A large international study aimed at improving the care of muscular dystrophy patients worldwide is being launched by physicians, physical therapists, and researchers at the University of Rochester Medical Center. Neurologist Robert “Berch” Griggs, M.D., is heading the study of treatments for Duchenne muscular dystrophy, the most common form of the disease that affects children…

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Functional Motor Neuron Subtypes Generated From Embryonic Stem Cells

Scientists have devised a method for coaxing mouse embryonic stem cells into forming a highly specific motor neuron subtype. The research, published by Cell Press in the September 3rd issue of the journal Cell Stem Cell, provides new insight into motor neuron differentiation and may prove useful for devising and testing future therapies for motor neuron diseases…

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Cause Of Lou Gehrig’s Disease, Amyotrophic Lateral Sclerosis (ALS) Linked To Chromosome Nine

Two substantial studies, and articles published by The Lancet Neurology have confirmed that variations to the genes located on chromosome number nine may contribute to the development of front temporal dementia and also ALS, amyotrophic lateral sclerosis which is commonly known as Lou Gehrig’s Disease…

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Leuprorelin Fails to Improve Swallowing in SBMA

A trial of a drug that reduces testosterone levels did not improve swallowing in men with spinal-bulbar muscular atrophy.

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ALS Research Briefs

Short updates on ALS research: KNS-760704, FUS protein in stress granules, SOD1 and mitochondria.

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Study Seeks People With Uncertain MD Diagnoses

Researchers seek adults with nonspecific diagnoses of muscular dystrophy or myopathy, who might have late-onset Pompe disease.

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Research Briefs: ALS, CMD, FA and SMA

News on amyotrophic lateral sclerosis, congenital muscular dystrophy, Friedreich’s ataxia and spinal muscular atrophy.

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Nationwide Children’s Hospital Named MD Research Center

A $7 million federal grant will allow researchers to focus on solving immune-system obstacles to MD gene therapy.

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Charity Millions ‘go To Fundraising Companies’ – Muscular Dystrophy Campaign Comment, UK

Please find below a comment from the Muscular Dystrophy Campaign following the story covered by Newsnight regarding fees paid to professional fundraising officers…

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New Genetic Risk Factor For Lou Gehrig’s Disease Identified By University Of Pennsylvania-Led Study

An international study led by biologists and neuroscientists from the University of Pennsylvania has identified a new genetic risk factor for amyotrophic lateral sclerosis, commonly known as ALS or Lou Gehrig’s disease…

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  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...
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