Our journey of uncertainty began with the birth of our daughter Ava. She was born on March 20th, 2007 at Yale Childrens Hospital. Prior to her birth, during one of her many ultrasounds, we were told that Ava was missing the corpus callosum, which is the piece of the brain that helps the two sides [...]

Posted in Our Stories | Comments closed

ENMC Collagen VI Workshop report, May 2009

By Unab | March 20, 2010

To read the report from the ENMC Collagen VI Workshop, click here.

Posted in Research News | Comments closed

Teen with CMD in the news

By Unab | January 30, 2010

Alex Van Hook is an active teenager- who happens to have CMD.
Alex Van Hook Article

Posted in Press Releases | Comments closed

S.A.M Announces Successful CMD Fundraising Campaign

By Unab | January 30, 2010

Struggle Against Muscular Dystrophy (S.A.M.) is a Northern Irish nonprofit started by 2 parents whose son has CMD. S.A.M’s mission is to find a treatment and cure for merosin deficient CMD and bring awareness to the CMDs. Cure CMD and S.A.M. teamed up to move CMD therapies forward- the 2009 Cure CMD grant cycle awarded [...]

Posted in Press Releases | Comments closed