Click here to view the April 2012 Global FKRP Patient Registry Newsletter
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Congenital Muscular Dystrophy
A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...-
Upcoming Fundraisers
- Pedal 4 Pierce Rocky Trail Rollercoaster
17 June 2012
Canberra, Austrailia - Pedal 4 Pierce Shimano MTB Grand Prix Round 2
7 July 2012
Canberra, Austrailia - Charlie's Take Me Out To The Ballgame!!
8 July 2012
New York - Minnesota 1/2 Marathon
4 August 2012
St Paul, MN - Pedal 4 Pierce Jet Black 12 Hour
11 August 2012
Canberra, Austrailia
- Pedal 4 Pierce Rocky Trail Rollercoaster
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