Author Archives: anne_rutkowski

For up to date information on CMD and LGMD clinical studies and trials

By anne_rutkowski | April 15, 2010

Click here…

Posted in Current Trials and Studies | Comments closed

CMD- “Can Make Donation”

By anne_rutkowski | March 21, 2010

Cure CMD has just made it easier for you to direct your donations.
Visit www.curecmd.org/donate to find out more.
Your support drives Cure CMD’s mission to identify a treatment and bring awareness to the CMDs.

Posted in News Scroller | Comments closed

Jake’s story

By anne_rutkowski | March 4, 2010

We were sent directly to the hospital from what was supposed to be a 35 week routine check up. My amniotic fluid was low and I was measuring small. After 35 weeks of a normal pregnancy, Jake was born by c-section on December 24, 2003 due to low fluid and in the breach position. He [...]

Posted in Our Stories | Comments closed

PTC 124 (Ataluren) fails to meet primary endpoints in Phase 2B study

By anne_rutkowski | March 4, 2010

More…

Posted in Research News | Comments closed

2009 NIH Funding Estimates for Muscular Dystrophy

By anne_rutkowski | February 4, 2010

Posted in Research News | Comments closed

CMD Drug Discovery Meeting

By anne_rutkowski | February 3, 2010

Posted in Research News | Comments closed

New to Cure CMD?

By anne_rutkowski | January 30, 2010

This year’s goal is to register the global CMD community.
Take a moment to register on the CMD International Registry (CMDIR), www.cmdir.org
CMDIR in French, German, Spanish and English. Turkish, Danish and Portuguese coming soon.

Posted in News Scroller | Comments closed

Payton’s story

By anne_rutkowski | January 21, 2010

My daughter was born in February of 2003, nine years after her older brother. I had been told for years that I would not be able to have more children, but I refused to give up. Three years later, my beautiful daughter was born. She was born 4 weeks early due to my development of [...]

Posted in Our Stories | Comments closed

Seeking Qualified Applicant for Muscle Disease Tenure Track Position

By anne_rutkowski | January 18, 2010

Posted in Research News | Comments closed

Congenital Muscular Dystrophy

A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...
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  - 13 September 2010
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  - 15 September 2010
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  - 21 September 2010
  - Bethesda, MD
- Cure CMD and NINDS: Common Data Elements Project meeting
  - 29 September 2010
- Team Cure CMD walks/runs San Jose Rock N Roll 1/2 Marathon
  - 3 October 2010
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This website is for the discussion of Congenital muscular dystrophy (CMD) research, treatment and care issues. Please note that the ideas posted are the views of the individual, who may or may not be a licensed professional. Please consult with your doctors before implementing any treatment suggested here.

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Author Archives: anne_rutkowski

Congenital Muscular Dystrophy

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