Author Archives: anne_rutkowski

CMD Quality of Life and Caregiver Assessment Survey

CMD Affected Individual and Caregiver Quality of Life Survey to be published August issue of Neuromuscular Disorders, shedding light on key areas to positively and negatively impact lives of people with CMD and their caregivers
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Cure CMD announces CMD BioBank

To find treatments for the CMDs and identify new CMD genes requires support from the CMD community. If you have CMD or are a sibling or parent of someone with CMD, we would like you to consider supporting CMD Discovery through donating a blood or skin biopsy sample to the CMD BioBank located at the [...]

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Bio-NMD update

BIO-NMD is a three year FP7 research project concentrating on the search for non-invasive biomarkers in people with Duchenne and Becker muscular dystrophies and Collagen VI myopathies (including Ullrich congential muscular dystrophy and Bethlem myopathy).

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Come walk, run and cheer 2 Cure CMD Teams to the finish!

2 Cure CMD Teams will walk and run their way through the San Jose and Los Angeles Rock N Roll 1/2 marathons.
To join the San Jose October 3rd event, click here
To join the Los Angeles, October 24th event, click here

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Cook for a Cure!

Cook For A Cure!, our first-ever fundraising cookbook to benefit Cure CMD.
Over 500 recipes submitted by friends, family, neighbors, co-workers, and acquaintances of the Cure CMD family. 
Visit our merchandise page to order your copy.

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Naturally Obssessed- The Making of A Scientist

Part of Cure CMD’s mission is to raise CMD awareness and momentum within the medical and scientific communities.  We want them to know what life with CMD is like, engage them to study and become passionate about CMD and make CMD their personal mission.
Click here to watch a fantastic PBS video on life as a graduate student in science [...]

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Aussies Ride to the CMD Challenge!

Heard of Pedal 4 Pierce?
This is the story of 11 year old Christopher, his friend, Pierce and a bike race in Canberra, Australia
Go to: www.stromloforestpark.com.au

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For up to date information on CMD and LGMD clinical studies and trials

Click here…

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Cure CMD Team Raises $21,000!

Congratulations to the Long Branch 1/2 Marathon Cure CMD Team!  
To read about the Team: www.curecmd.org/njmarathon2009
Join a Cure CMD Team.  Upcoming events: San Jose and Los Angeles Rock N Roll 1/2 Marathons

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CMD- “Can Make Donation”

Cure CMD has just made it easier for you to direct your donations.
Visit www.curecmd.org/donate to find out more.
Your support drives Cure CMD’s mission to identify a treatment and bring awareness to the CMDs.

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  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...
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