Proxy Outcome Measure

The National Institute of Nursing Research of the National Institutes of Health (NIH) is recruiting parents or caregivers of children with neuromuscular disease under 6 years old to participate in a research study. Click here for more information.

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  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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