International Congenital Muscle Disease Scoliosis Webinar

Cure CMD, the Joshua Frase Foundation and the Myotubular Trust have co-organized an international Webinar for families on scoliosis management in congenital muscle disease, including congenital myopathy and congenital muscular dystrophy.  Webinar presentations from Dr. Roye (US Orthopedic surgeon) and Mr. Noordeen (UK Orthopedic surgeon). Moderation by Drs. Rutkowski, Bonnemann and Foley.  To read several perspective stories from parents and people with congenital muscle disease:
http://curecmd.org/archives/4033#more-4033
http://curecmd.org/archives/4028#more-4028
http://www.myotubulartrust.com/talk-resources-scoliosis-shaun.htm
http://www.myotubulartrust.com/talk-resources-scoliosis-sukhi.htm

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  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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