CMD Comparative Outcome Measure Study 2011

On June 3-5th, 31 families participated in the CMD Comparative Outcome Measure Study in Bethesda, Maryland. This 5 year study, funded by NIH and Cure CMD is in its 2nd year.  The goal of the study is to define the natural history of collagen 6 and LAMA2 related (merosin) deficient CMD and identify endpoints for future clinical trials. We would like to thank the families, clinicians and NIH staff who all volunteered their time to make this study possible.  Looking forward to CMD COM III (June 8-10th, 2012)

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  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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