CMD Teens Share Perspectives on CMD with FDA

Kings Floyd of Maine and Luke Hoban of Pennsylvania shared their perspectives on life with CMD on camera and in person with the Orphan Products Development (OOPD) staff at the FDA on February 1st.  Video footage included an interview with Dr. Tim Cote, Director of OOPD (FDA) which will be  available on Youtube in upcoming months.  A big thanks to Kings and Luke and their families for promoting CMD awareness within the FDA.

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  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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