Yuchen’s story: I Wish

盼我深吸了一口气,咬紧了牙关,双臂使劲地撑住桌面,我感觉到双腿的颤抖,我尽量把重量放到腿上去,努力扶着桌子站了起来,汗从头上滴落,一滴一滴地落到桌面上,迸散开来,我心里默默念着,“坚持、坚持”就在我几乎站不住的时候,我完成了规定时间的锻炼。瘫坐在椅子上休息片刻后,我又开始了下一组的练习……这对于正常人来说是再简单不过的事情了,可对于我来说,每一次的站立锻炼,都要付出很多的努力。    在我四岁多的时候,得了一种直到现在都不能确诊的病,因为身体里缺少一种物质,导致肌肉失去了部分的机能,我不会走路了……从那一天开始,我就盼着能治好病的一天,盼着能站起来的一天,盼着能在操场上和同学们奔跑的一天快点到来……   为了这个盼望,我一定要努力,在充满着盼望的日子里,我也要努力拥有阳光灿烂的生活……

   鼓槌敲击着鼓面,发出悦耳轻快的节奏声,我操纵着鼓槌,让它在几个鼓之间灵活的跳跃着 ,脚下用力的踩踏着低音鼓,发出了咚咚的声音……我的演奏博得了老师和同学们的掌声。学鼓已经一年多了,还记得最初拿起鼓槌时的情景,敲击一会儿鼓面手就开始发软,感觉有些攥不住鼓槌,几个鼓面之间的转换所需要身体转动,使得我的腰又酸又痛,一个小时的学习让我感觉很吃力。虽然我也产生了退缩的念头,但为了学鼓可以锻炼四肢的力量,我努力坚持了下来。慢慢的,我感觉到手长时间攥起鼓槌并不那么费力了,腰部也变得灵活了,我开始享受到了学鼓的乐趣,每天我都要练习打鼓一个小时,我尽量去扭动腰部,手臂也尽量抬高,使我的打击水平在一天天进步着,我的演奏越来越富有激情。我在使用各种方法向我的盼望努力着,等待着它的到来。每天,我都要进行站立和行走的锻炼,虽然很辛苦,但我的心里充满了无比的希望;每周,妈妈背着我上三层楼去上辅导课的时候,我把妈妈的付出化为动力来更努力地学习。当我在各种比赛中获奖的时候,我心里甜丝丝的同时又找到了更高的努力方向;当和同学们一起玩耍,他们推着我奔跑在操场上时,我感觉我就象一只小鸟一样自由的飞翔。当同学和身边的人遇到困难时,我很乐意用一颗仁爱之心和一双友爱的手去帮助他们……

  几年来,这种盼望给了我很大的动力,它使我拥有了坚强的性格和善良的心灵,使我拥有人生的目标并为之而努力,使我有幸得到了更多的关爱。

  几天前,我的主治大夫熊阿姨打来电话,说我的病已经初步分析出体内所缺少的物质了,虽然还不能最后确诊,但准备把我的检查报告带到国际的医学会议上一起研究……我知道了这个消息后特别高兴,我这么多年的期盼也许就快实现了,真要感谢这些医生叔叔和阿姨们,这几年来,他们一直没停止对我病情的研究,一直让各国的专家来给我会诊。即使这次的研究还是没有找到治疗的方案,我也不会失望,我要更努力的锻炼,让我的身心更全面的发展,继续盼望下去,直到盼望实现那一天的到来……

  这天晚上,我做了一个梦,梦中天真蓝,还有几多雪白的云彩,操场边的草地真绿呀,几朵粉红色的花盛开着。我和同学们在操场上奔跑,我的腿抬得很高很高,步幅迈的很大很大。我比小伙伴跑们都要快……

I Wish  Taking a deep breath and setting my teeth, with two arms sustaining against the table, I tried to put weight on my legs and stand up. I can feel the tremble of my legs. Sweat dropped from my forehead to the table and scattered— one drop, and then another. I told myself in my heart “hold on, hold on!”. Nearly at the same time when I cannot stand any longer, this section of exercise finally ended as I had fulfilled the training time requirement. shortly after sagging on the chair for a break, I began my next group of exercise……To stand up is something that cannot be more normal for any people. But to me, I have to make good effort for such practice every time. When I was four years old, I got a disease that cannot be determined even until today. Due to the lack of certain material in my body, something went wrong with my muscles— I have been unable to walk again……From that very day, I have been wishing that sooner come the day……  the day when I can get rid of the disease, the day when I can stand up freely, and the day when I can run on the playground together with all my classmates……For this wish to come true, I must try my best. In these days full of wish, I must also try my best to lead a wonderful life……

With drum sticks beating against the drumhead, I hold on the sticks and let them jump from one drum to another. With the laborious efforts of my feet playing the bass drum, the rub-a-dub sounds are actually my heartbeat ……My performances win me much applause from my teachers and classmates. Having learned playing drum for more than one year, I can still remember the situation when I first picked up drum sticks. After playing the drum for a while, I felt my hands becoming softer and softer, and I could barely hold the drum sticks. Transition among several drums needs twisting body, which made my waist sour and ache. An hour of practice was really something to me. Though occasionally I had the idea of giving up, as playing drum can enhance the strength of my limbs, I try to hold on. Slowly, I feel that holding drum sticks tightly for a long time is not so exhausting, and my waist becomes more flexible. Thus I begin to enjoy playing drum. Every day I practice playing drum for one hour. I twist my waist and lift my arms as hard as possible. Not only my drum skills are progressing day by day, but also I can show the enthusiasm in my inner-heart better through such performance. I try all kinds of methods for my deeply-cherished wish, full of eagerness.

Every day, I do exercises of standing up and walking—full of pains and hardships, but my heart is full of wish. Every week, Mum climbs several flights of stairs while carrying me on her back, only to enable me to sit my favorite after-school course. I could not think of any way of repaying her for her great efforts, which always encourage me studying harder. When I get prizes in various kinds of competitions, I taste the sweets of success and set for myself a higher goal at the same time. When I enjoy the happy time on the playground with my classmates pushing the wheel-chair I am sitting, I feel I were flying freely, just like a bird. When my classmates and people around me encounter difficulties, I am also very glad to help them with my loving heart and my friendly hands……

During the past years, this wish has motivated me a lot giving me a strong mind and a caring heart. It has set for me a goal and is always encouraging me in pursuit of this goal. It has also brought me more caring loves.

Several days ago, Aunt Xiong, who is my attending doctor, called and told us that although my disease had not yet been determined, the material that my body is short of was initially found out. She is ready to take my medical examination reports to international medical conferences for a study and discussion……I was greatly cheered by the news. Maybe my wish will come true soon.  I cherish my gratitude for these doctor uncles and aunts. In these years, they have never stopped studying my disease, inviting international experts for group consultation. Even if the study of this time cannot provide an effective therapy scheme, I will not be disappointed. I’ll do exercises harder, both physically and mentally. I will continue my wish until it come true ……

I have a dream one night. In the dream, the sky is so blue with several white clouds dotted here and there. The grass around the playground is so green with several pink flowers blooming. Also in this dream, I am running with my classmates on the playground. My legs can lift really high. I am running faster than all those dear classmates……

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  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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