July 26 2010
CMD Affected Individual and Caregiver Quality of Life Survey to be published August issue of Neuromuscular Disorders, shedding light on key areas to positively and negatively impact lives of people with CMD and their caregivers
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Congenital Muscular Dystrophy
A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...-
Events
- Fourth TREAT-NMD Curators’ Training Course
- 5 September 2010
- Paris, France
- CMD Scientific and Medical Advisory Board Meeting
- 13 September 2010
- CMD Translational Grant Deadline
- 15 September 2010
- Conference on Clinical Research for Rare Diseases
- 21 September 2010
- Bethesda, MD
- Cure CMD and NINDS: Common Data Elements Project meeting
- 29 September 2010
- Fourth TREAT-NMD Curators’ Training Course
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