BIO-NMD is a three year FP7 research project concentrating on the search for non-invasive biomarkers in people with Duchenne and Becker muscular dystrophies and Collagen VI myopathies (including Ullrich congential muscular dystrophy and Bethlem myopathy).
It is a collaboration between 12 international partners, all experts in their fields, and is led by Professor Alessandra Ferlini at the University of Ferrara, Italy.
Biomarkers are substances in the body that offer a way to measure normal or abnormal processes in the body. This means that processes associated with particular diseases can be measured and disease progression monitored. It also means that the effect of drugs or other therapies on disease progression can be evaluated.
BIO-NMD’s website – www.bio-nmd.eu – provides additional details of the project and participant institutions, people involved and their roles within the project along with various overseeing ethical boards.
In particular there is now has a ‘patient-friendly’ section written in collaboration with the Patient Advisory Committee members from the Muscular Dystrophy Campaign, United Parents Projects and Telethon. The aim of the patient section is to explain what BIO-NMD is all about in lay-terms, to involve as many interested parties as possible, to provide contact details for the project and to ensure a mechanism for people to ask questions or provide feedback using an online form. The pages can be viewed at: www.bio-nmd.eu/forPatients/
Additionally, project updates and events of interest to the wider community will be featured on the website.
For further details please visit the site or contact the BIO-NMD communication and dissemination officer, Cathy Turner: email@example.com; Tel: +44 (0)191 209 3549.