CMD Standard of Care Online Family and Affected Individual Survey

We need you! Cure CMD and TREAT-NMD have teamed up to launch a CMD Standard of Care (SOC) initiative led by Drs. Ching Wang, Thomas Sejersen and Anne Rutkowski.  The CMD SOC workshop will take place Nov 14th-16th with the goal of publishing a CMD SOC document in 2010.  We need your perspective on the CMD care issues you currently face or have faced. Results of the survey will be presented to the CMD SOC committee.

Click here to go to online survey.  Thank you for your participation by Sept 30th!

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  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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