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Congenital Muscular Dystrophy
A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...-
Upcoming Fundraisers
- Minnesota 1/2 Marathon
4 August 2011
St Paul, MN - Ruby's Diner Hosts Cure CMD Fundraiser
19 February 2012
Rolling Hills Estates, CA 90274 - Long Branch 1/2 Marathon
6 May 2012
Long Branch, NJ - Charlie's Take Me Out To The Ballgame!!
8 July 2012
New York - Disneyland 1/2 Marathon
2 September 2012
Anaheim, CA
- Minnesota 1/2 Marathon
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Jefferson Award Honors Doctor Determined To Cure Rare Disease HIBM
A Los Angeles doctor who has made it his life's work to find a cure for the rare disease Heredity Inclusion Body Myopathy, or HIBM, has won this month's Channel ABC7 (Los Angeles) Jefferson Award. Through media partnerships throughout the US the Jefferson Award organization, which was co-founded by Jacqueline Kennedy-Onassis in 1972, acknowledges and honors people who have made a difference in their community.
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