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Contact advocacy@curecmd.org with questions

Join us for the inaugural CMD Advocacy Event: Your Voice Matters! During this virtual event, you are invited to view informational videos and to attend live sessions to learn about current legislative issues affecting the CMD Community, to develop storytelling skills for advocacy, and to connect with other CMD Advocates.
 

CMD Advocates will also have the option to meet virtually with Members of Congress or their staffers to discuss current challenges and opportunities (U.S. only). These meetings are optional, but are a great way to put your advocacy skills into action and put a face to CMD to policymakers.
 

Those who attend any of the scheduled sessions will receive helpful materials and guides to kickstart their advocacy.

Registration Closed

Your Voice Matters

CMD Virtual Advocacy Event

When: October 1 - 12, 2025
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Cure CMD supports and advocates for legislation at all levels of government to empower those living with congenital muscular dystrophy.

We strive to:

  • Improve access and accommodations for all forms of travel, including air, train and public transit.

  • Increase access to PreK-12 and post-secondary education, including physical accessibility and access to educational supports.

  • Advance employment for those affected by CMD

    • Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) reform).

    • End subminimum wage practices.

    • Provide incentives for businesses to hire people with disabilities.

  • Ensure timely approval of and access to medical care and equipment by public and private insurance.

  • Reinforce CMD research through National Institute of Health (NIH) funding.

  • Support programs and incentives that encourage the development of treatments for CMD and other rare diseases.

Pending U.S. Legislation

Get Involved: Resources & Opportunities

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